Hpv positive tonsil cancer
I’m newly diagnosed stage 3 hpv positive tonsil cancer. I had a surgery to remove the tonsil and I’m going to start with my treatment radiation and chemotherapy in two weeks time. Is there any one with the information about how successful this treatment is
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You didn’t have chemotherapy? Because they suggested 35 sessions of radiotherapy and one chemotherapy after the third week.
Hi Linda,
In June 2024 I completed 35 rounds of radiation and 6 chemo for stage 3 HPV related tonsil cancer. The treatment was somewhat challenging as I'm sure you've gathered by now from others in this forum but definitely tolerable and more important survivable. As I've mentioned a few times since joining this group, one area where I differ from some others is I am a big proponent of having a feeding tube inserted. My team insisted and I'm grateful they did. It helped maintain my nutritional needs and now I have nothing but a very small scar to show for it. I had the "button" type which is smaller and very easy to use and maintain. Bottom line, a little more than a year post treatment I'm about 95% my old self enjoying life everyday. Best of luck, there is quality of life after this.
Thank you for these links. This is exactly the treatment I am hoping for.
I was diagnosed w hpv tonsil cancer that had metastasized to my lymph nodes 2 years ago in April -I had both tonsils removed and a right neck dissection- one lymph node was affected - 42 were removed,
For 2 years I have seen my oncologist every 3 moths — as of April I see them every 6 moths for 3 mote years w annual chest CT’s and 6 month blood tests. I was fortunate- no radiation
Still praying for continued positive Check ups
This post is hopefully positive reading for everyone going through this in their life— I am here and so far doing well heading into 3 years after my diagnosis and surgery at Mayo Clinic -
So — I thank God any my Mayo team for helping me to be able to post this