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Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 27 9:45am | Replies (25)
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I started Verapamil after not being able to handle Diltiazem. I had severe full body pain. I was taken off the metropolol before the diltiazem. I'm tolerating the verapamil pretty well, but still have a lot of SOB. Unfortunately my insurance only allowed me to see the cardiology team at Mayo for clarification of diagnosis. They thought I might have had cardiac sarcoidosis, but the biopsy revealed Non-Hodgkins Lymphoma instead. I see people mention a COE Dr. How do I know if my new cardiologist (first appointment is Sept 2) is COE?
Replies to "I started Verapamil after not being able to handle Diltiazem. I had severe full body pain...."
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Please find out if your cardiologist is associated with a COE (Center of Excellence - a place with medical professionals that specialize in HCM or other particular ailments). Look here to find out which places have that designation: https://www.4hcm.org/ You can also ask those you saw at Mayo for a recommendation. I was taking Verapamil for many years before a septal myectomy. During the last 5 months before surgery, my dose was increased (do not remember the specifics), an annoying side effect was constipation.