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Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 19, 2025 | Replies (37)
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I was diagnosed with HOCM/HF in April. EF is 33%. A month later I was also diagnosed with Non-Hodgkins B-cell lymphoma. I also have stage 2 Chronic Kidney Disease and at the end of July severe stomach pain put me in the hospital where an endoscopy was performed finding 6 large deep ulcers with H Pylori infection. I just joined connect today and really appreciate the information being shared. I have sat and wondered, "how does one live with all these diagnoses?" I'm so glad I finally have a place to learn from the experience of those sharing here. So Thank-you!
Replies to "I was diagnosed with HOCM/HF in April. EF is 33%. A month later I was also..."
Clarification:
Second opinion for GI Kidney issues.
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Wow, @kerryj2025,
What a crazy time this must be for you! I am so glad you found Mayo Clinic Connect.
I don't know where to start, you have so much going on.
I'd like to introduce you to one of our amazing Mentors, @gingerw .
Not only is she amazing, but she also lives with multiple scary conditions and is able to find balance in life. If you get a chance, read some of her posts. You will be inspired!
It's no wonder you have sat and wondered how to live with all these things.
There is a lot of coordination that needs to happen with all your different treating physicians, that's for certain. Each one needs to know what the other is doing to ensure you are getting not only the best care, but the right care.
It's easy to say just take it one day at a time, but when your day includes the list you have? That's just impossible to comprehend. Yet here you are! And I am so glad you are here.
I would assume (which we know what that means) that the conditions need to be prioritized and treated accordingly. Which one should be treated first? I would assume (there I go again!) that your FP is at the helm and directing all this.
It must feel overwhelming. Like a huge mountain you must climb.
Do you have a hobby you love that you can do?
Are you able to get outside in the fresh air and sunshine?
Do you have a faith background you can seek comfort from?
I'd also like to introduce you to another equally amazing Mentor, @loribmt. Her journey will inspire you. Her humor and strength to face tough, tough medical challenges is nothing short of amazing, and worthy of a Hallmark movie.
Here is a link to the Mayo Clinic hypertrophic cardiomyopathy. It's good to get to know your new heart condition since it's not going away!
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
Do you know what the next steps are for you?
Have you had time to even think about a second opinion?
It may help going forward to be certain there is confirmation and clarity as you lug your burden along this new and wild journey.