Finally... Some answers

Thanks for the suggestion and encouragement. Much
appreciated.

If you have not tried Low Dose Naltrexone (LDN), give a tiny dose a try. I stated at 1.5 mg and it stopped some of the constant chronic pain from Long COVID. I slowly worked up to 3.5 mg and most of my pain is gone. It has also improved my shortness of breath and gives me a little more energy.

I had few side effects but did experience extreme sleepiness for the first two weeks but it was only for an hour or so right after taking it. After that initial period, now it gives me insomnia if I take it after 3 pm. It does give you vivid trippy dreams...not scary but kind of wild, unrealistic circumstances...like sitting on top of a very high dresser watching the sky.

It works by blocking your endorphin receptor for a few hours and then your body makes extra endorphins which for me equates to a little burst of energy about 2-3 hours after I take it. And you will know when you find the right dose for your body...I worked up to 4.5 mg but felt better at 3.5 mg so dropped back down.

I appreciate the response. I'll give that a try. The brain fog isn't too bad but I do forget words here and there. I go to trivia every week and I was finding it hard to get the answers out of my mouth even though I knew that they were in my brain.
Heading to Amazon now!

I had PVC's and SVT's PLUS bouts of A-fib day and night, 24/7 for one solid year after Long Covid. I had every cardiac test, and saw several doctors. The doctor that monitors me at Johns Hopkins Hospital in a trial I am in with JHH is the doc who immediate said I have Long Covid. He told me it would go away and just wait it out but no guarantee how long it would take. He informed me, and this was also mentioned to me by a new physician I have with Mercy Hospital that yes indeed it was Long Covid. Many of my doctors never heard of it. I left them immediately.
The top doc at Mercy Hospital said that the strain of Covid in 2022 and 2023 was second to the worst original strain and caused hundred of thousands of after effects in months to come.
I knew that LC was inflammation of the heart and other organs, and cholesterol drugs, beta blockers, etc., were not the cure, just a treatment.
Even though Motrin, etc., causes asthma and higher blood pressure for me, and I never take it, I decided I needed something to help with inflammation.
Two weeks of taking Motrin, 100 MG once a day (which is very little) was the magic ingredient. My palpitations and aFib stopped completely almost to the day, one year later in Nov. 2024. Just like that. Stopped. Have not come back.
I am so glad you are on the mend. And I wish for you a recovery that stops "just like that".

I had PVC's and SVT's PLUS bouts of A-fib day and night, 24/7 for one solid year after Long Covid. I had every cardiac test, and saw several doctors. The doctor that monitors me at Johns Hopkins Hospital in a trial I am in with JHH is the doc who immediate said I have Long Covid. He told me it would go away and just wait it out but no guarantee how long it would take. He informed me, and this was also mentioned to me by a new physician I have with Mercy Hospital that yes indeed it was Long Covid. Many of my doctors never heard of it. I left them immediately.
The top doc at Mercy Hospital said that the strain of Covid in 2022 and 2023 was second to the worst original strain and caused hundred of thousands of after effects in months to come.
I knew that LC was inflammation of the heart and other organs, and cholesterol drugs, beta blockers, etc., were not the cure, just a treatment.
Even though Motrin, etc., causes asthma and higher blood pressure for me, and I never take it, I decided I needed something to help with inflammation.
Two weeks of taking Motrin, 100 MG once a day (which is very little) was the magic ingredient. My palpitations and aFib stopped completely almost to the day, one year later in Nov. 2024. Just like that. Stopped. Have not come back.
I am so glad you are on the mend. And I wish for you a recovery that stops "just like that".

I was also a runner and very active. June of 2022 (after having Covid in January and March), I woke up one Saturday and felt absolutely horrible, poisoned, fatigued...I felt so bad that I went to the doctor, which I never used to do. I did not get the vaccine because the only vaccinations I have ever gotten were the ones my pediatrician gave me when I was little (measles, etc.) I have had this Sh*t for 3 years now. The doctors knew nothing of Long COVID. I had to do my own research on my own blood work. EBV reactivated, RA Igg, Parvo reactivated, ANA Titer, all these things were foreign to me. I never knew I had Epstein Barre Virus but apparently at some point I did. My PCP sent me to an RA doctor. She was not very nice and even rolled her eyes at me when I told her I thought it was Long COVID. I did not go see her again. So, having seen my PCP several times, I believe she believes it is real, however, prescribed 800 mg Ibuprofen and also another anti-inflammatory (can't even think of the name now...brain fog) but both are bad for the kidneys. Anyway, my shrink has been the most helpful. I take 4 medications in the morning to be able to function during the day. Gabapentin, Vyvanse, Naltrexone and Cymbalta. At one point in 2023, I applied for social security disability. Turned down because I am in graduate school, remotely. I started that journey before I got sick. I am able to do the school work, however, the internship/field placement is a challenge sometimes. Luckily, I am able to do some of that from home. On another note, I am a recovering alcoholic/addict of 7+years. I have been fighting addiction since the age of 14 years old. I finally got sober in 2017 (47 yrs old). I was the healthiest I have ever been with running daily, weights, working full time, living a good life sober. I was heavily involved in 12 step groups and had many people in my "circle." When I got sick, I had to quit my job, although I was able to stay in school and registered with the students with disabilities program at the University. Many people in my life just do not either believe that Long COVID is real or they are just not able to empathize. I feel very isolated. I have always been a person that loved being around others, going places, camping, SCUBA, hiking, etc., and now I do my school work, go to my field placement (16 hours a week) and that is it. If I did not take my meds in the morning, I would not be able to do much. I went through a period of hopelessness, hence the Cymbalta. I get tired of telling people, "I don't feel good," or trying to explain post exertion malaise. I do have hope now. This community has helped me so much as well. I do not feel as alone in this when I come and read what others have found helpful. What I have found helpful is that I remain in the moment or the day. I went to my mother's yesterday, she has dementia. I was there for about 7 hours. I woke up this morning feeling terrible. Emotional as well as physical exertion, I pay for the next day. I can't think about that all the time. I have to just do what I can and feel like doing at the time. I do try and think of things I am grateful for. I have a year of school left and then I will have my master's in social work. That helps my mind. I am still sober, as without that, I would not even be here to write this post. I want to be able to exercise again. I do what I can when I feel like doing it and that is usually about an hour or two after I take my meds in the morning. So, enough about me. I just want to tell you that I relate, hope that you hang in there and to thank all you people in this group that continue to spread hope and kindness.