← Return to My MDS does not respond to treatments. What's next?

Discussion
Comment receiving replies
Profile picture for janetlen @janetlen

@snakebite Thank you for this reply. As my disease progresses I have been dreading transfusions. I too feel it puts me on a track of last resorts, but also on a track of dependency. Your tough love gave me hope. First feeling better, but also your longevity. You would not have had the opportunity with Ojjaara if you had given up. So, when I get there, I will suck it up and have the transfusions.

Jump to this post


Replies to "@snakebite Thank you for this reply. As my disease progresses I have been dreading transfusions. I..."

I get platelets and rbc infusions for months now
They keep me alive so I am thankful
Also the infusion nurses and patients are so nice
Like a family