Pari eRapid/eFlow first impressions

I would call Pari before I skipped the soap step, unlike water alone, it actually breaks the surface tension that holds substances on the parts - I know they are microscopic but my experience with previous mesh nebulizers from Philips taught me it takes very little to mess them up (that is why Philips quit making them.)

I used the pause button tonight for the first time - that was helpful too.

Thanks, understood.

Maybe I could get away with just soaking the aerosol heads in soapy water instead of everything, then boiling everything. Would require a much smaller soaking container and less double rinsing.

My technique continues to improve, insofar as I'm hardly ever setting off the air purifier now, getting very agile with the pause button, and acclimating to the intensity of the saline so I usually only cough on the first breath.

I have been only nebbing once per day recently but today I did a second session because I went to a movie and had to take my mask off because laughing kept fogging up my glasses (it was the new Naked Gun, highly recommend). I didn't finish the whole second vial; I stopped after about 6 minutes, while a full 4ml vial takes about 12 minutes using my technique of pausing flow on the exhales, and holding my breath a few seconds after the inhales, and stopping to spit out mucus and drink water occasionally.

This device has given me back an hour a day. Worth every penny.

I still cough a lot while nebulizing 7% NACl. I tried sue’s method with the tongue which helps a little. I am still not good but getting better. It’s speed is such time saver.

I am using my new eRapid and absolutely loving it! It only takes five minutes and is completely silent. Game-changer! Even though it leaves one ml of 7% behind, it clearly aerosols deeper which leads to better productivity for me. The mouthpiece is interchangeable with my LC sprint so that’s good to know. Curious if it can be hooked up to the Aerobika, but haven’t tried that yet.
There is an excellent video on using it and what each part does. It explains that the blue gasket serves as an expiratory function, with valves on each side that stop the incoming flow of medicine when you’re exhaling, so you’re not wasting too much medicine. The expiratory valve on the mouthpiece allows your exhale to exit. It seems to be appropriately and efficiently set up to help restrict the flow while exhaling to save the medicine. I seem to be getting enough as I am more productive than I was with any other equipment. The video is very informative about a few things, so was worth the watch.
https://share.google/UZA0vnOFN0O9Sl6rr

Thank you - the video helped me figure out what I was doing wrong with the cap - now it stays in place.
Still loving it almost 3 weeks in.

I have had it for about a month and am loving it. I like that the nebulizer is easy to take apart for cleaning— I am now thinking that the others I had did not last as long as I though they should have due to the difficulty of accessing and thoroughly cleaning the mesh. I also like that most of the electronics are not near the liquid medications and thus stay dry. I think this will also be a factor in extending its lifetime over the other brands I used.

Hi e-flow users,
I kept meaning to throw in here ... I have been using the e-flow for 11 months to deliver Arikayce or placebo, as part of a study (along with ethambutol and Azithromycin). The study protocols have us boiling the parts for 5 minutes in DISTILLED water after soaking in hot tap water with a couple of drops of dish detergent (any clear variety of any color but not the white or lotion-resembling types).
It occurred to me that the distilled water may help with not building up mineral deposits on the mesh.
Again this is for a med or placebo, not saline. I would think the saline is harder on the mesh.
Interested in all the initial experiences here.

This is what I was given to use during my Clinical trial thru NJH. I used it for a year and found it very easy to use and clean. Disappointed when I had to turn it in after the study was completed.

Interesting, Sue. I seem to remember that while you don't produce the amount of mucus that I do you seem to have a similar mix of Be and asthma. I am currently on a trip from Perth and spending time in Queensland where I have had very scary sob all the way down
the coast. It seemed to be connected to sugar cane burning, high humidity, low cloud cover. Telephone consult with my GP had her guessing it was an asthma flair, which I don't recall ever having before in WA. She has put me on Symbicort 2puffs, 2xday for 2 weeks. This seems to be addressing the problem. I am hoping that the sob won't return when I stop the Symbicort. From memory you take the Symbicort on an ongoing basis before nebbing, don't you? I used to take the Ventolin puffer before nebbing, but have now swapped for the Symbicort...and may just continue with that while over here to prevent another attack. I know we have discussed LMP and I agree in finding what works for us individually.

I am still bringing up large volumes of mucus, and seem to, in recent months, only have an hour or two where I am not coughing and spitting...it is now seeming to impact much more on my life.

I am interested to hear peoples response to Pari eflow. ..I decided to have the Pari Trek shipped via a friend to Australia rather than the expense of the eflow...for this long overland trip.

I would be interested in your thoughts on the above, Sue.