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My doctors know nothing

Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (50)

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Profile picture for razorsharp @razorsharp

Hello Tommy. How are you today Buddy. Can you tell me what CAPTEM is because I may ask my Doctor about it the next time I see him, Because at the moment my Cancer is still stable in the Liver & Pancreatic so far. But at my age of been 80 yrs old and with hart problems Plus other things that I've got, if it start to get away is it worth fighting on, because I'm I've already had enough already of this been sick and weak all the time. To me this is not a life but a pain in the butt. I was told at the start my Cancer is so rear that they would be luck to find 27 other people in the hole of Australia that has the same as me & even the USA would only have about 59 that has my Cancer & if it get away I've only have about 5 to 6 weeks of life left that how fast it will move. But what is CAPTEM ?????

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Replies to "Hello Tommy. How are you today Buddy. Can you tell me what CAPTEM is because I..."

Hello @razorsharp,

I see that you were inquiring about the CAPTEM. Until, @tomrennie, responds to your post, I wanted to share with you some information about CAPTEM from the National Institute of Health website. Here is the link, https://pmc.ncbi.nlm.nih.gov/articles/PMC9790144/

On Connect, there are many members who have posted about using this chemotherapy treatment. Here is a link to those conversations, https://connect.mayoclinic.org/search/?search=CAPTEM.

In general, how are you feeling, @razorsharp?

Hey. Good morning to you. I am doing great. I woke up. How are you today? CAPTEM is a combination of two chemo pills, capecitabine and temozolomide. Typically, you take capecitabine for 14 days. On the last 5 days, you add temozolomide. It is a wee bit stronger. Each 14 days is called a cycle. I was on CAPTEM for 13 cycles. It shrunk my main cancer issues on my pancreas and liver over 50% allowing my body to work again. For the past two years, I have just been on capecitabine and everything has remained stable. It most likely won't last forever, but I am going to ride the capecitabine train as long as I can. I am curious. What day and time is it in your part of the world?