@googi
Thanks for the context. As you have been told and have read, the likelihood of your MGUS advancing to Multiple Myeloma is low.
I would rather not have it, but since I do, it has meant that I get some really excellent healthcare. As others can attest, your hematologist will initually schedule appointments more frequently in order to see how stable your lab results stay. You may also get CT or PET scans to ensure you don’t have bone lesions, indicative of progression to Multiple Myeloma.
Coexisting conditions such as diabetes, age and other indicators of overall general health are considerations, so your hematologist is the best resource for information. Do ask for a consultation if you find that you still have unanswered questions.
Lots of our MGUS members have experienced neuropathy. I started feeling numbness in my feet a couple of years before I was diagnosed with MGUS which in retrospect makes me think I’ve had MGUS a lot longer than my initial diagnosis 4 years ago. There are some medications that may be helpful to you. Ask for a referral to a neurologist if that is not yet happened.
Our members have shared information about diet and supplements that they have found helpful. I am experimenting with 2000mg daily of Curcumin after talking with my PCP doctor, pharmacist, hematologist and other members. My numbers went down but then went up slightly which I attribute to having major surgery. We’ll see if they stabilize when I go back next month.
The link below may be helpful to you about understanding lab results.
I’m really glad you found us.
https://www.myelomacentral.com/livingwithmm/multiple-myeloma-treatment-monitoring/understanding-multiple-myeloma-lab-test-results