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Profile picture for Lori, Volunteer Mentor @loribmt

Hi Paul, Interesting that you and your friend both share a similar diagnosis, though years apart. He blazed the trail for you and probably gives you some peace of mind that this is a disease that can be considered chronic in some cases. I’m glad to see that he’s alive and healthy after 14 years. That’s wonderful!
You seem to be following a similar path. People can have some blood conditions and blood cancers years before they’re ever discovered because many develop very slowly over time. If you’re 84, with no symptoms or requiring any treatment at this time, I’d say just carry on with what you’re doing and put this in the back of your mind. Your doctor will continue with routine blood work that will pick up any changes, should they happen. Outside of the knowledge that you do have a diagnosis, basically nothing else has changed for you. So full speed ahead!
How often do you have labs now?

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Replies to "Hi Paul, Interesting that you and your friend both share a similar diagnosis, though years apart...."

Thank you for your encouraging words, Lori. Re your question: Dr wants blood draws every three months. This is fine with me. I am charting my various CBC panel factors that specifically relate to Tcell LGL. And cross comparing with friends historical tract record.