Hello Lori, Many thanks for reaching out. I get semiannual blood tests because I am taking Simvastatin. A year ago I paid more attention to my low RBC count and red blood cell abnormalities. MCV and MCH. My cardiologist was not concerned. I was, and found a local oncologist/hematologist in my area. Blood tests in December and a follow up in July this year with a definitive diagnosis of T cell LGL. I have a best friend who was diagnosed with this in 2013 and went to Dr Thomas P Loughran, then at Hershey. MY friend has shared his blood work with me. We have differences. But same diagnosis. By blood chemistry indicates no treatment necessary at this point.
I am 84 year old and am very active at the gym 30 minutes on elliptical, weights and stretching. I have no symptoms and feel well. My friend Jim went on low dose methotrexate in 2011 for a year, prednisone for the following year and Leukeran for the third year. All did little. Since 2013 no treatments. He is still alive and well at 82. I have extensive blood work and would be happy to share if this is allowed.
Dr Loughran is considered at discoverer of this disease and is a renowned expert.
https://uvahealth.com/findadoctor/THOMAS-LOUGHRAN-1932158615?utm_source=pressganey&utm_medium=listings