← Return to Help to reconstruct my life and body due to 2 types of cancer.

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@colleenyoung

Welcome to Connect, @starrlight. I'm glad you joined us. What a lovely username you chose.

Thank you for the details of your journey thus far. It helps me to be able to connect you to other members who can relate. I'd like to introduce you first to @travelgirl who was also diagnosed with 2 different cancers: lymphoma and cecum (colorectal) cancer. Please also meet @joannem @user_cha5e73f6 @brucey1 and @soul who have experience with colorectal surgery and colostomy, either themselves or a loved one. Then there's @sbee and @hopeful33250 who both have had an Endoscopic Mucosal Resection (EMR)

Starrlight, have you already called Mayo Clinic? If not, here are the contact numbers, including for Arizona http://mayocl.in/1mtmR63
What are the less invasive surgical options you're interested in learning more about?

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Replies to "Welcome to Connect, @starrlight. I'm glad you joined us. What a lovely username you chose. Thank..."

Thank you i did try American Canc Society last yr was going to stay in a motel however that fell through the Canc Society was going to pay for the motel and transportation to the surgeon, something happened here where i live and had to cancel, finally went later in yr. however with canc care, have not contacted Mayo yet felt under the weather today and just not up to it, thank you for your concern.  Hopefully Mayo will be able to help as this is my last hope for this issue. there was a canc. group here however they have quit and really not like Mayo Connect at all.Hope your day has been great.Starrlight

So glad you are doing so well, the tumor i have was first diagnosed as a mass when i had a colonoscopy in 2015, surgeon found 2 polyps removed them, reported on paper canc. next day called said benign, however he was concerned about a mass in rectum, and that is how it is today after a very neg. surgeon was sent to here who was an MD. not a specialist, then last oct went to a specialist in this field, they both said a bag, i do not feel i can take a major surgery now nor do i want to live with the bag so i keep looking for a less invasive procedure which Mayo has, and hopefully they can help with the brst canc. as well as going nowhere with it, just different things from diff people where i go including the Dr. and nurse.  hopefully haven't bored you with all of this and hope you are doing great.Starrlight

Have called Mayo Clinic and also my Insurance this week and last week. Mayo does not cover Medicare/Medicaid which i have, i am at a stand still on this and continue to have numerous bowel movement daily which i have been told is from the radiation i had over one year ago. The 3 surgeons at Mayo in Scottsdale all use less invasive procedures then the bag, Mayo is the one that the last colorectal surgeon i saw referred me to. I am now on Ibrance and had a different bowel color today then had before, called the Ibrance nurse for my Pharmacy and asked if the Ibrance would cause this, he said no i looked it up online and see that yes it can cause the change in color, so see who are we to believe when a specialist does not know. the Ibrance is for the brst canc that is also in my body. On the upswing i obtained a new Primary Dr. who is connected with the hospital here in Prescott as are all the Dr's in her office. Told her my history and said "so hope that you are the Dr. that can help and care about me and my plight, she said " she certainly will try, she is a temp Dr. until June unless she decides to stay, felt comfortable with her.

Know we are suppose to keep a positive attitude here however like so many others on Connect, we go through many trials with this disease sometimes for me it is not positive, yet when one door closes another door opens and i know that prayer is the ans. may not be what i want however my will is not the Heavenly Father's will, and know we must learn patience and continue as so many of you have and that in itself is an ans. to prayer as you have endured.

Many BLESSINGS to all.

Not sure where i will go from here, i do not know what cecum canc. is that some have spoke of. Hope to hear from any who would like to talk as part of the healing in this canc. or any disease is family and network family/friends.

Starrlight