Have had 38 cycles with Abraxane & Gemczar. CA19-9 rising.
I have had 3 years of chemo with Abraxane & Gemczar: 75 treatments with a break of 4 months 2024. My CA19-9 seems to have plateaued and is now up to 62.5. Neuropath is increasing to feet & hands. Spent all night up with pain last night til 0630 today. Will see oncologist before next chemo. My CT was good in June & is being scheduled for Sept.
Any ideas what I should be asking. As a "retired" RN I tend to minimize symptoms like increasing neuropathy & middle & low back pain. Taking care of yourself can be more of a challenge than taking care of and advocating for others.
Thanks in advance for your input.
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Someone mentioned earlier, @stageivsurvivor actually, that at this time due it bring in phase 3 testing, there's not enough 6236 to be given
as compassionate use. Just wondering how much of its effectiveness is hype as our very own @gamaryanne was only it for a few months before a nodule appeared on her lungs.