@vlazorenko Hi, and welcome to our little group on Mayo Clinic Connect! I’m so glad you found us! I’m sorry that you’re dealing with such a disease when your country is dealing with an even bigger problem! I wish you well and safe keeping.
I was diagnosed with CLIPPERS in 2018 and was on steroids until April 2025. Lots of problems came along with tapering but I’m doing OK now. I’m on mycophenolic acid (Myfortic) and rituximab infusions every 6 months.
We’re taking a driving trip on Monday to see how I handle everything . I’ve just really run out of energy. Would rather be sleeping!
So glad you’re here’! Ask any questions and we will try to answer them . Becky