Daily Migraines - How do we function?

Sometimes I’m fine and bam! Sometimes same part of the day. The aura… difficult to talk, can’t think clearly, balance off, feel like I’m on a rocking boat, hurt enough it’s hard to walk, hold the walk…. If I asked my wife she’d probably either add or say something different. I forget a lot after. It changes so much. The scariest tho is when I can tell it’s coming on fast. I know as soon as it starts this is going to be bad . It’s like a train in my head that’s just moved to full throttle. I try and go straight for the ice bag, ( last time got 1 cube out of 10 in there) to a pillow over my head and to my chest. Forgot. My body’s shaking so bad I can’t describe it. I forget a lot after. There’s more but can’t think of it now. I need a break. This place, I can’t believe there’s other people out there… my thoughts are getting mixed up.
Thank you!
Oh, let me know when I can post that painting. 😂. I’m normally very shy… insecure but want to show it

I forget. It’s hitting now and I’ll try to describe. Ate. Stood up. Felt it comi ing up my leg. Lightly. Breathing harder but not as hard s now.. difficult understanding. Heart hurting. Dragging foot. Leg sore. Breathing harder . Head worse. Wife saying something Coukdnnt understand. Shaking nauseous. Head worded and worse. Diffferent lowrrr left between below ear and above neck Heart hurts. This is all in minutes. Light so bright head so bad worse so bad like a drill ok never tried in real time but too much

It’s 3 hrs later and I’m going to finish this. My head burning still bad… but preferable to earlier. Exhausted, ground down . Wired, like I’m speeding and worn out. Sickening smell of gasoline but mixed with something rotten. My eyes still all swollen. Head Still sore on left like they used my head for batting practice. These are all common for me. I’ve never got it wrote down like this before. I dread the rest of the night. But, as soon as I start to feel a little better I’ll forget most of what happened. Went to neurologist w out writing it all down, asked how I was… my reply, fine. I was determined be part of all this here. I feel like I’ve humiliated myself. It’s the rollercoaster for me. There’s no getting off. Gets worse. Eases up. Worse is longer but everytime it eases up and I think, maybe this time? I’m always caught completely off guard like it’s never happened before. … or when it’s bad, I never felt like I was dying from it like so many times before. Aren’t you used to it yet? It’s been years? You never get used to it.
There’s so many other people here looking for help and I’m : me me me me. 1.00 now. So, how long can a 67 yr old body keep going? They all say, nothing wrong. Just can’t do anything and have no muscle anymore. I can paint. Read if I can focus. Play guitar even with a full blown migraine , not very well😂. Write adnauseum 😂 😂 ending this laughing. Who would’ve thought after all that whining… 😂😂 you guys are gonna start going, oh god 😂not him again😂thank you…🥲

Hi, @eastbaydave - wow, those are a lot of rough symptoms in succession. I imagine you don't get used to it, like you said.

Sounds like at a recent visit to the neurologist you didn't have written down all the symptoms you've written here. It does seem like it would be useful for a treating doctor. Have you shown him or her a listing of all these symptoms you experience before? If so, what did they say about them?

Pretty brain dead right now. 2,trucks hit head on me in middle. This is the hangover.
Last visit to doc… we’ve done just about everything. (It’s true ) Rx’d an early migraine med ergotamine & cF (?), read interactions, wouldn’t take it…
Later… gonna be a rough morning…

Hi everyone,
I’ve been struggling with migraine since I was about 10 years old, and now I’m 21. Lately, it has become much worse — I get attacks every single day, and it’s really affecting my life. I’ve seen many doctors and even tried getting help from different pharmacies, but I still haven’t found a treatment that works for me.
I’m reaching out here because I’m really suffering, and I would love to hear from anyone who has gone through something similar. What has helped you manage your migraines? Are there specific treatments, medications, or lifestyle changes that made a difference for you?
Any advice or shared experiences would mean a lot. Thank you so much.

I mean no disrespect to anyone. I see take a walk, get some exercise… if bad, I’m holding the wall to keep from falling in my hallway. Constantly bumping into things. If ibubrofen helped I’d be doing cartwheels! The nausea isn’t as bad as it was. Right now is the best time I’ve had in a while . That’s 1 or 2… (maybe 3 a day).. but not nearly as severe as usual ( no knives thru my head). I actually left the house twice! I use an ice bag not the head cap thing. I know the pain, the fear the terror. But…I just did my emgality shot a few days ago. I have no idea if it’s that. Topirimate too. Triptans nothing. Prednisone wreaked havoc on me and I will never take it again. I see it helps so many people. Never had sinus issues. Did have nerve tips seared. 5 rounds Botox. I’m 67. Worried about stroke? Kind of. More wore worried about spending the rest of my life like this. I’d do or take anything, don’t care where it came from, to have quality time with my adult kids, my wife, travel across the country and actually enjoy my daughter’s wedding. Give me that and I won’t be hanging around with a stroke.
Cathy, Im sorry. I hope with all my heart nothing but the best for you. The things that help me are distraction. I paint. I play guitar. I read if my eyes let me. Listen to music if my head lets me…. And yes, I even watch tv
🙄 if nothing else. I try to look at life differently (😂you can see from my happy post) but I truly do… it’s just hard when you keep slippin back… and when I’m not not whining I’m actually trying to learn how good I got it
5 yrs ago…

Welcome to Mayo Clinic Connect, @biqemperor2028. You've been dealing with these migraines a long time, and since you were a little kid.

Really sorry to hear it's become much worse lately and you are experiencing migraines daily.

It sounds like you've done a thorough job of talking to different pharmacies and meeting with different doctors to try to get help.

For background, what medications or other therapies have you tried that didn't work for you?

I’ve never tried this, but a relative has - she uses medically prescribed CBD gummies. Says that they really help her. Botox and Ubrelvy help me live a normal life - after 6 months of nonstop migraines.

I had an ablation procedure about 8 years ago on left side of neck that involved cauterizing the nerve in my neck. After over 45 years of almost daily migraines they were finally totally gone! I rarely even get a mild headache anymore. A friend had the same procedure done by a different doctor but it had no effect. Her migraines continue. I had the migraines caused by a horse riding accident at age 11. Perhaps the ablation only works on certain types of causes? Best wishes for you!
I did have a stroke last year (9/2024) but managed to survive it to the surprise of the hospital neurologist. It was a Basilar artery stroke 100% occlusion (Google it). Less than 15% survive. It was caused from irregular heartbeats from a head injury 10 years prior which has caused tiny clots to travel to my brain. Recovering hasn't been easy. My balance is bad but I refuse to use a cane. 8 months of symptoms leading up to the big one probably caused my brain to set up auxiliary routes of circulation that kicked in. Not having migraines made it far more tolerable. It was quite fascinating to study up on it using UTube videos.
My son lives in the east bay too. Fremont. Nice and cool place to live.