I saw another post by @wmjmck asking the same question - has anyone tried Nerve Flow. I think you have to start with there is no cure for neuropathy and then do your homework on any supplement or miracle cure on the market professing to make your neuropathy disappear. I've posted this before but here's some useful tips for vetting neuropathy treatments from the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2025/03/VettingPNinfo.pdf.
I saw another post by @wmjmck asking the same question - has anyone tried Nerve Flow. I think you have to start with there is no cure for neuropathy and then do your homework on any supplement or miracle cure on the market professing to make your neuropathy disappear. I've posted this before but here's some useful tips for vetting neuropathy treatments from the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2025/03/VettingPNinfo.pdf.
I second what John says about the need to begin with accepting that there is no cure (at least at this time). Since developing PN, I've been, if not bombarded, certainly -bomb-bothered, by sales pitches for "total cures." One pitch that at first alarmed mr but now I simply skip over is the full color, half vertical sleeve into which my Sunday newspaper is inserted. The sleeve is a super-boastful ad for a local doctor (doctor? doctor of what?) who wishes me to know that he's able to cure my PN.
Why I was at first "alarmed" to see this ad had nothing to do with the ad's subject but that it's appearance along with my Sunday paper was more evidence in this digital age of just how porous our lives have become. My Sunday newspaper knows I have PN?
I suppose it knows my routing number, too. 🙂
I second what John says about the need to begin with accepting that there is no cure (at least at this time). Since developing PN, I've been, if not bombarded, certainly -bomb-bothered, by sales pitches for "total cures." One pitch that at first alarmed mr but now I simply skip over is the full color, half vertical sleeve into which my Sunday newspaper is inserted. The sleeve is a super-boastful ad for a local doctor (doctor? doctor of what?) who wishes me to know that he's able to cure my PN.
Why I was at first "alarmed" to see this ad had nothing to do with the ad's subject but that it's appearance along with my Sunday paper was more evidence in this digital age of just how porous our lives have become. My Sunday newspaper knows I have PN?
I suppose it knows my routing number, too. 🙂
I constantly receive invites in the mail from Chiropractors, Wellness clinics, etc for free dinner seminars to learn how they can end my neuropthy pain and regenerate my peripheral nerves.
I've often thought of going for the free meals as I could save some money on groceries. They usually are nice restaurants.
My problem is I do not think I could make it until dinner was over before I challenged their ethics. The mere thought that they prey on people at a vulnerable time infuriates me.
I saw another post by @wmjmck asking the same question - has anyone tried Nerve Flow. I think you have to start with there is no cure for neuropathy and then do your homework on any supplement or miracle cure on the market professing to make your neuropathy disappear. I've posted this before but here's some useful tips for vetting neuropathy treatments from the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2025/03/VettingPNinfo.pdf.
I saw another post by @wmjmck asking the same question - has anyone tried Nerve Flow. I think you have to start with there is no cure for neuropathy and then do your homework on any supplement or miracle cure on the market professing to make your neuropathy disappear. I've posted this before but here's some useful tips for vetting neuropathy treatments from the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2025/03/VettingPNinfo.pdf.
Just curious. What makes " Foundation For Peripheral Neuropathy " legitimate? They have many of the same supplement ingredients as many that are called scams have. So why are they trusted? Why is Big Pharma trusted. Why is the FDA trusted. All this Neuropathy that people have over the past 10,15,20 years is really alarming. I understand some people have had SFN for many years, but the spike in Neuropathy victims in the recent years is extremely alarming. All of a sudden there are MANY commercials that talk about Neuropathy. Why ? MANY MANY,MANY, medications have black label warnings that warn ( possible Neuropathy using this certain medication. I would not doubt it for a minute that if we could figure out what food,drink,chemical, or medication we are taking that is causing our Neuropathy, that there is a way to reverse it. I am no Dr. Or Scientists but our bodies are amazing. And I know God has all the answers on all of these things that happen to our bodies. Some day we will know. Well I hope and pray you all have relief at least tonight from your ailments.
Just curious. What makes " Foundation For Peripheral Neuropathy " legitimate? They have many of the same supplement ingredients as many that are called scams have. So why are they trusted? Why is Big Pharma trusted. Why is the FDA trusted. All this Neuropathy that people have over the past 10,15,20 years is really alarming. I understand some people have had SFN for many years, but the spike in Neuropathy victims in the recent years is extremely alarming. All of a sudden there are MANY commercials that talk about Neuropathy. Why ? MANY MANY,MANY, medications have black label warnings that warn ( possible Neuropathy using this certain medication. I would not doubt it for a minute that if we could figure out what food,drink,chemical, or medication we are taking that is causing our Neuropathy, that there is a way to reverse it. I am no Dr. Or Scientists but our bodies are amazing. And I know God has all the answers on all of these things that happen to our bodies. Some day we will know. Well I hope and pray you all have relief at least tonight from your ailments.
Good question, They reorganized the list of supplements that members have found helpful and I did see the LivOn Labs is a big supporter of the Foundation for Peripheral Neuropathy and probably had input on the section of the website but FPN does not sell anything. I find that the About page under Our Purpose tells me that it's a trusted source of information.
"The Foundation for Peripheral Neuropathy is a 100% philanthropically funded public charity foundation committed to improving the lives of those affected by peripheral neuropathy (PN). We are dedicated to furthering awareness, education, advocacy, and research to advance the discovery of new therapies and possible cures."
-- https://www.foundationforpn.org/about/
Unfortunately for those of us with neuropathy, we have to be our own best advocate and like you mentioned, avoid scams and the so called neuropathy cures. I do like that the Foundation for Peripheral Neuropathy put together a great tip sheet to help us vet PN information - https://www.foundationforpn.org/wp-content/uploads/2025/01/VettingPNinfo.pdf.
Good question, They reorganized the list of supplements that members have found helpful and I did see the LivOn Labs is a big supporter of the Foundation for Peripheral Neuropathy and probably had input on the section of the website but FPN does not sell anything. I find that the About page under Our Purpose tells me that it's a trusted source of information.
"The Foundation for Peripheral Neuropathy is a 100% philanthropically funded public charity foundation committed to improving the lives of those affected by peripheral neuropathy (PN). We are dedicated to furthering awareness, education, advocacy, and research to advance the discovery of new therapies and possible cures."
-- https://www.foundationforpn.org/about/
Unfortunately for those of us with neuropathy, we have to be our own best advocate and like you mentioned, avoid scams and the so called neuropathy cures. I do like that the Foundation for Peripheral Neuropathy put together a great tip sheet to help us vet PN information - https://www.foundationforpn.org/wp-content/uploads/2025/01/VettingPNinfo.pdf.
I have tried a few of the online add garbage & that’s what 99% of the crap is. When they make these promises & state the Mayor Clinc, John Hopkins & shark tank are backing their product. Pull up the places they claim are backing their product. The Mayo Clinc, John Hopkins, Shark Tank & Elon Musk have had nothing to do with their crap.
Good question, They reorganized the list of supplements that members have found helpful and I did see the LivOn Labs is a big supporter of the Foundation for Peripheral Neuropathy and probably had input on the section of the website but FPN does not sell anything. I find that the About page under Our Purpose tells me that it's a trusted source of information.
"The Foundation for Peripheral Neuropathy is a 100% philanthropically funded public charity foundation committed to improving the lives of those affected by peripheral neuropathy (PN). We are dedicated to furthering awareness, education, advocacy, and research to advance the discovery of new therapies and possible cures."
-- https://www.foundationforpn.org/about/
Unfortunately for those of us with neuropathy, we have to be our own best advocate and like you mentioned, avoid scams and the so called neuropathy cures. I do like that the Foundation for Peripheral Neuropathy put together a great tip sheet to help us vet PN information - https://www.foundationforpn.org/wp-content/uploads/2025/01/VettingPNinfo.pdf.
Sorry so late getting back with you.. Thank you John for your reply. I agree that there are so many scams out there making millions of dollars. I mean, yes, they do have some good supplements in their products, but bottom line is , they do not work. John, have u heard of Nerve Sync? Or anybody else heard of this? Or anybody try it? This SFN is a horrible horrible medical condition to have. The sad thing is knowing there are people with much worse medical conditions, and in much more pain than I have. And let me tell you, I have many. I did concrete for 26 years, and roofing for a few and other hard physical labor jobs. I have 16 bulging discs, and spinal stenosis, foraminal stenosis, in neck and lower back. Severe degenerative arthritis everywhere, neck,back,both knees,left shoulder, finger joints that they actually want to replace, even in my chest, feet, ankles, etc. etc. But, that being said I can still walk around, run if I had to, and do many things, but is painful. But the worst pain is SFN. It is horrible. But I am grateful for what U can do. Sorry, time to get off pity pot. Let me know if anybody heard of or used Nerve Sync. Thanks
Connect
Connect
Like
Helpful
Hug
Has anyone tried Nerve Flow supplement for peripheral neuropathy? Or is this just another scam?
-
Like -
Helpful -
Hug
1 ReactionI saw another post by @wmjmck asking the same question - has anyone tried Nerve Flow. I think you have to start with there is no cure for neuropathy and then do your homework on any supplement or miracle cure on the market professing to make your neuropathy disappear. I've posted this before but here's some useful tips for vetting neuropathy treatments from the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2025/03/VettingPNinfo.pdf.
There are also a couple of different discussions that mention various different products that are suspect:
-- Neuropathy pills: How to avoid scams? - https://connect.mayoclinic.org/discussion/neuropathy-pill/
-- Quazar's guidance about avoiding scams and snake oil cures - https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/
-
Like -
Helpful -
Hug
7 ReactionsGood morning, @vbadeaux
I second what John says about the need to begin with accepting that there is no cure (at least at this time). Since developing PN, I've been, if not bombarded, certainly -bomb-bothered, by sales pitches for "total cures." One pitch that at first alarmed mr but now I simply skip over is the full color, half vertical sleeve into which my Sunday newspaper is inserted. The sleeve is a super-boastful ad for a local doctor (doctor? doctor of what?) who wishes me to know that he's able to cure my PN.
Why I was at first "alarmed" to see this ad had nothing to do with the ad's subject but that it's appearance along with my Sunday paper was more evidence in this digital age of just how porous our lives have become. My Sunday newspaper knows I have PN?
I suppose it knows my routing number, too. 🙂
Good luck, @vbadeaux, in steering clear of scams!
Cheers!
Ray (@ray666)
-
Like -
Helpful -
Hug
8 ReactionsI constantly receive invites in the mail from Chiropractors, Wellness clinics, etc for free dinner seminars to learn how they can end my neuropthy pain and regenerate my peripheral nerves.
I've often thought of going for the free meals as I could save some money on groceries. They usually are nice restaurants.
My problem is I do not think I could make it until dinner was over before I challenged their ethics. The mere thought that they prey on people at a vulnerable time infuriates me.
-
Like -
Helpful -
Hug
2 ReactionsIf it sounds too good to be true, then it's a scam.
-
Like -
Helpful -
Hug
1 ReactionThank you, John. I will check out the two links you provided.
-
Like -
Helpful -
Hug
1 ReactionJust curious. What makes " Foundation For Peripheral Neuropathy " legitimate? They have many of the same supplement ingredients as many that are called scams have. So why are they trusted? Why is Big Pharma trusted. Why is the FDA trusted. All this Neuropathy that people have over the past 10,15,20 years is really alarming. I understand some people have had SFN for many years, but the spike in Neuropathy victims in the recent years is extremely alarming. All of a sudden there are MANY commercials that talk about Neuropathy. Why ? MANY MANY,MANY, medications have black label warnings that warn ( possible Neuropathy using this certain medication. I would not doubt it for a minute that if we could figure out what food,drink,chemical, or medication we are taking that is causing our Neuropathy, that there is a way to reverse it. I am no Dr. Or Scientists but our bodies are amazing. And I know God has all the answers on all of these things that happen to our bodies. Some day we will know. Well I hope and pray you all have relief at least tonight from your ailments.
-
Like -
Helpful -
Hug
1 ReactionGood question, They reorganized the list of supplements that members have found helpful and I did see the LivOn Labs is a big supporter of the Foundation for Peripheral Neuropathy and probably had input on the section of the website but FPN does not sell anything. I find that the About page under Our Purpose tells me that it's a trusted source of information.
"The Foundation for Peripheral Neuropathy is a 100% philanthropically funded public charity foundation committed to improving the lives of those affected by peripheral neuropathy (PN). We are dedicated to furthering awareness, education, advocacy, and research to advance the discovery of new therapies and possible cures."
-- https://www.foundationforpn.org/about/
Unfortunately for those of us with neuropathy, we have to be our own best advocate and like you mentioned, avoid scams and the so called neuropathy cures. I do like that the Foundation for Peripheral Neuropathy put together a great tip sheet to help us vet PN information - https://www.foundationforpn.org/wp-content/uploads/2025/01/VettingPNinfo.pdf.
-
Like -
Helpful -
Hug
2 ReactionsI have tried a few of the online add garbage & that’s what 99% of the crap is. When they make these promises & state the Mayor Clinc, John Hopkins & shark tank are backing their product. Pull up the places they claim are backing their product. The Mayo Clinc, John Hopkins, Shark Tank & Elon Musk have had nothing to do with their crap.
-
Like -
Helpful -
Hug
2 ReactionsSorry so late getting back with you.. Thank you John for your reply. I agree that there are so many scams out there making millions of dollars. I mean, yes, they do have some good supplements in their products, but bottom line is , they do not work. John, have u heard of Nerve Sync? Or anybody else heard of this? Or anybody try it? This SFN is a horrible horrible medical condition to have. The sad thing is knowing there are people with much worse medical conditions, and in much more pain than I have. And let me tell you, I have many. I did concrete for 26 years, and roofing for a few and other hard physical labor jobs. I have 16 bulging discs, and spinal stenosis, foraminal stenosis, in neck and lower back. Severe degenerative arthritis everywhere, neck,back,both knees,left shoulder, finger joints that they actually want to replace, even in my chest, feet, ankles, etc. etc. But, that being said I can still walk around, run if I had to, and do many things, but is painful. But the worst pain is SFN. It is horrible. But I am grateful for what U can do. Sorry, time to get off pity pot. Let me know if anybody heard of or used Nerve Sync. Thanks
-
Like -
Helpful -
Hug
1 Reaction