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If you have these symptoms would love your input.

Posted by rybren @rybren, Jun 30 1:30pm

Been to so many Dr’s, none have a clue.
Seems spike protein has messed me up, serious chronic fatigue, lately skin feels like I had a sunburn, burns and itches. Nothing visable.

Chonic fatigue hits me hard 1-2 days a week. Leaves me utterly exhausted for days, had every test imaginable.

Do others have these symptoms? What are you doing about it? Need some help.

Once again been to so many Dr’s, all types. They know nothing about this condition.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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h2998sc | @h2998sc | Aug 12 5:51pm

I think a lot of Doctors just don't want to deal with symptoms that are virtually unable to be seen.Then there's those who've studied and based their life on helping others.

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yparsons52 | @yparsons52 | Aug 13 10:33am

I deal with fatigue one to two times a month. It takes me days to feel better. On top of all this I was also diagnosed with Crohn’s disease. I have days where every muscle aches but I force myself to keep moving. All this has also led to deep depression. I am doing massage and acupuncture which helps some but when insurance will not pay for alternative therapy I cannot do this as often as I would like to. I have been seen in the Post-Covid clinic near to where I live. The doctor was honest in saying they just don’t know enough about the “whys” behind the symptoms to effectively treat them.

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sanDGuy | @sandguy | Aug 13 3:41pm
In reply to @yparsons52 "I deal with fatigue one to two times a month. It takes me days to feel..." + (show)
Profile picture for yparsons52 @yparsons52

I deal with fatigue one to two times a month. It takes me days to feel better. On top of all this I was also diagnosed with Crohn’s disease. I have days where every muscle aches but I force myself to keep moving. All this has also led to deep depression. I am doing massage and acupuncture which helps some but when insurance will not pay for alternative therapy I cannot do this as often as I would like to. I have been seen in the Post-Covid clinic near to where I live. The doctor was honest in saying they just don’t know enough about the “whys” behind the symptoms to effectively treat them.

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Re your final sentence, I believe the doctors have to just ignore the "whys", as this whole syndrome is still mysterious, and simply treat the symptoms directly as best they can! Try to be assertive in asking for that.

I'm sorry to hear about your Crohn's as that can be very difficult.

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gkdew2 | @gkdew2 | Aug 14 1:54pm
In reply to @dandre83 "Hi. I hate hearing this about you. I Just hate it. Writing about this stuff does..." + (show)
Profile picture for dandre83 @dandre83

Hi. I hate hearing this about you. I Just hate it. Writing about this stuff does help me but ultimately we are all suckers. Western medicine got us into this situation, it will not get us out, they don't want to admit the truth.

This is sad to say but I am on my final leg, balancing life, work, family...while being sick as a dog for 3 full years. As a single-income earner my family is about to fall, and all I can do is watch from this infected body.

Here is my reality, June 2021-present
-Sun-Tue or Mon-Wed, every week since I got the Moderna booster, I've been sick - covid/vax reactivates my depression, suicidal thoughts, my system goes haywire, sweaty, can't control body temp, dilated eyes, pure panic situation, etc.
-I am no longer myself. I've cut off my friends, it's too exhausting to maintain anything, really, much less a relationship. They can't understand what I'm going through
-I've tried more than a few treatments, HBOT, NAD+, nicotine, LDN, plus others. None help reduce my symptoms, thousands of dollars down the drain.
-Money at some point goes dry, I'm at that point.

No one cares, I probably wouldn't either if I was healthy. That's a cold hard fact. I will work to protect my family and then determine how best to live/not live the rest of my life. This is not a temporary problem.

I can't do this any longer.

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I’m so sorry to hear this. I know what you mean because my adult kids think this is all in my head. Hang in there because one of these days one of the studies will find solutions. Even though you feel defeated your family needs you and loves you.

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