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rajincajunmom (@rajincajunmom)

Many symptoms still 2 months after meningioma surgery

Brain Tumor | Last Active: Feb 9, 2017 | Replies (14)

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Unfortunately I was allergic to most pain meds so didn’t even come home with any, but I did take steriods for a time and also a seizure medicine called
Gabapentin that helped with the pain as well. I’m not good at taking pills and I like to be pill free but if my head gets hurting real bad I take an extra strength excedrin or an aspirin, which usually cuts the pain to manageable. Like I said it’s been a while since surgery and I still cannot sleep on the surgery side of my head. It causes an excess amount of pressure. After both my surgeries I also had double vision for about 3 months. I couldn’t drive, etc. and wore a patch a lot of the time to avoid nausea,etc.I now have 2 tumors on the other side but am opting for radiation this summer at Swedish Hosp. in Seattle. I really hope you can get your pain manageable but I’m not sure if we can ever be 100% pain free. I am living a happy productive life. I did ask my neuro to push the genius button when he was rooting around he my head, but he said, “That’ll cost you extra:-)” I’m really grateful we all have our wits about us, and I’m continually amazed at how many people/children have brain tumors. There needs to be more funding and focus for research. Side note, I talked to my brother the other day and he related to me that last summer he had brain tumor surgery. He didn’t tell any of us because he was too nervous. Oddly enough he had meningiomas as well, only his was wrapped around his optic nerve and blinded him in his left eye. Stay strong, you’re not alone, we’ll walk this journey together because as Audrey Hepburn said, The BEST thing to HOLD onto in life is EACH OTHER! love,peg

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Replies to "Unfortunately I was allergic to most pain meds so didn't even come home with any, but..."

Thank you. That was so inspiring. I’m not alone. I can’t sleep on my back or my right side either. I had insomnia for a little over a month. Nausea too. Not able to eat and so on. Again, thanks for letting me know that I’m not alone. God bless you. And please keep me in your prayers.❤

Will definitely keep you in my prayers and wishing you all the best life has to offer. All for 1 and 1 for all! love,peg #braintumorwarriors

You are great. Your persistence is stronger than brain tumours. Contine fighting you are the winner! God bless you.

Welcome to Connect, @asuzanna. Can you tell us a bit about yourself?