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It’s exhausting and tiring. I am with you all the way. My husband has MCI I believe could be dementia he had never been diagnosed. He realizes that he can’t remember everything but we have never discussed it.
We plod along and try and deal with day to day life. Nothing is in the same place anymore and it exhausts me looking, I cannot put anything down for a minute the other day I had something to mail and put it on the cabinet when I came in he had opened it. It seems trivial, but when you add it to everything else it isn’t? I am beginning to forget who I am, and the things he remembers that are not right that I am doubting whether he is right or I am? I try not to disagree at all because there is no point it just makes him angry. And on top of it he was just diagnosed with recurrent prostrate cancer third time, plus he had lung cancer in the past. I haven’t told him since he is getting shots I just say it’s a preventive shot that you get when you get older, he never said what for? And I don’t see any point in telling him. The shots have made him have hallucinations not bad but very strange when he wakes up looking for what he was dreaming about but doesn’t know. Can I survive this of course I can I love this man who gave me everything and to this day tells me he loves me everyday. Now I want to cry. Just try and get away for a while if you can. 😍
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I'm so sorry you are going through all this with your husband who is so ill. That's sad. I know it must be hard trying to cope with his unusual behavior. It is nice to hear that you love him and he still tells you everyday that he loves you. Your husband is probably frightened and realizes; even though sometimes it may not seem like it, that something is terribly wrong with him. My husband had lung cancer and died last July. The last few weeks of his life he was taking Prednisone and the side effects caused him to act oddly at times; frightened that I'd not return if I just went to the bathroom, waving his arms around for no reason etc. But we both loved one another and told each other that daily like you and your husband do. Hold onto that because there may be a time when you won't hear it again if your husband goes to Heaven before you. I know I miss hearing my husband saying I love you even when he wasn't quite right.
Prayer helps immensely. It did for me and still does. God is there for us. We can get through these times with God's help. I'll say a prayer for you and your husband.
I wish you both the best.
PML