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Can anyone share their experience with Nubeqa?

Prostate Cancer | Last Active: Aug 14 4:00pm | Replies (55)

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I have been on Nubeqa almost 3 years. I always take it with food and within 1/2 hour of being 12 hours between doses. No digestive problems to report. I do experience some brain fog and weakness but I am also on Lupron every 3 mos and have had chronic lymphocytic leukemia for 20 years so it’s hard to say where my symptoms come from. But the combination of Nubeqa and Lupron have kept my PSA and testosterone levels to virtually zero. Also, my prostate cancer had already spread to my liver and bones when I was diagnosed and I’m still alive and kicking ( thought not as long as I used to).
So , to summarize, Nubequa is helping to keep me alive. That’s worth the side effects.

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Replies to "I have been on Nubeqa almost 3 years. I always take it with food and within..."

I take a shot every 3 months along with nubeqa. I'm like you I'm thankfully for every day. Do you have any pain anywhere? My psa dropped from 53 to 19.

AMEN!!

Wow! Three years. I thought I was long at two years. Started when I did chemo, soon after I started Lupron injections. Stopped Lupron after 13 months. So I’ve been on Nubeqa monotherapy for almost a year. Primary side effects include gynecomastia and fatigue, especially in my legs. My PSA has stayed negligible while my T has risen to 350.