Pancreatic Cancer Group: Introduce yourself and connect with others

Hi. Glad to have found you. I was diagnosed in Feb 2025 and have had eight rounds of folfirinox. I am scheduled for a total pancreatectomy on August 4, 2025. The surgery includes reconstruction of the portal vein and an artery as well as removal of the spleen , gallbladder and local lymph nodes. I have normal CA-19-9 levels and no genetic markers for Pancreatic Cancer. Plan currently calls for four more rounds of chemo post surgery--if all goes as expected.

Hi. Glad to have found you. I was diagnosed in Feb 2025 and have had eight rounds of folfirinox. I am scheduled for a total pancreatectomy on August 4, 2025. The surgery includes reconstruction of the portal vein and an artery as well as removal of the spleen , gallbladder and local lymph nodes. I have normal CA-19-9 levels and no genetic markers for Pancreatic Cancer. Plan currently calls for four more rounds of chemo post surgery--if all goes as expected.

I was diagnosed with stage 2 pancreatic cancer July, 8th 2024. I have my second appt with the surgeon tomorrow, Wednesday, June, 4th, 2025 to hopefully schedule the whipple surgery.
My tumor was wrapped around the artery when 1st diagnosed. My last scans the end of May show it is now against the artery but not wrapped around it.
I did chemo treatments July, 2024 to the end of May, 2025.
I’m currently receiving medical care at KU Medical Center in KC, KS. I’m on a waiting list to be seen by an oncologist at Mayo Clinic in Rochester, MN. for a 2nd opinion.

Hello, I am a caregiver for my husband
Who has been recently diagnosed with pancreatic cancer. The surgeon has said he feels this is completely removable doesn’t think a Whipple is required and said it is about a 2 cm tumour. My husband is experiencing greasy orange stool which I know I have read on here others have had. I want him to go to family dr tomorrow and get pancreatic enzymes. I got some for him from health food store but they don’t seem to be helping much with gas and diarrhea. I’d love to hear from others who have been diagnosed, are caregivers or have had any surgery for this cancer.

Hi. Glad to have found you. I was diagnosed in Feb 2025 and have had eight rounds of folfirinox. I am scheduled for a total pancreatectomy on August 4, 2025. The surgery includes reconstruction of the portal vein and an artery as well as removal of the spleen , gallbladder and local lymph nodes. I have normal CA-19-9 levels and no genetic markers for Pancreatic Cancer. Plan currently calls for four more rounds of chemo post surgery--if all goes as expected.

Hello, my name is Jim. I'm 78yo and was diagnosed with stage 2 PC in May 2023. My treatment plan called for 8 chemo treatments (every other week) then Whipple followed by 2 more chemo's. After the 2nd treatment my CA 19-9 levels were below normal so my oncologist recommended we stop chemo and go directly to surgery. After 7 hours the surgeon declared, "We got it. We got it all!" Followup chemo was canceled. Naturally I was overjoyed.
Then in May of this year a routine CT uncovered PC in my lungs. Devastating. What's more, after 4 rescheduled chemo treatments my oncologist spaced my treatments 7 weeks apart claiming it's to improve quality of life. I don't handle treatments well but I can certainly handle it monthly. So we'll see. Having said that I feel fine. No pain, have a good appetite and no weight loss. Lost all hair, have a severe cough and extremely fatigued. In short, I don't know where I stand. I think my oncologist considers me doomed and offers nothing in alternative treatments. Looking for answers.