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onthejoedock avatar

How bad is a diagnosis of Polycythemia Vera?

Blood Cancers & Disorders | Last Active: Aug 13 12:12pm | Replies (33)

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Hi I am 75 also and diagnosed maybe in 2019. Anyhow I have only done baby aspirin and have refused medication. MyHgb platelets etc are within normal my RBC a touch high. But never had a blood clot My oncologist will not allow my HCT to go beyond 44. Even 44.5 they want to do phlebotomy which is draining and I get it done now monthly
It is too much.

Any comments appreciate

I am well hydrated. Sleeping ok. No itching follow mostly organic. And elimination of sugar except fruits etc

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Replies to "Hi I am 75 also and diagnosed maybe in 2019. Anyhow I have only done baby..."

Glad things are going well for you. My Dr put me on Jakafi and I no longer have phlebotomy’s. I’m doing really well with no side effects

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