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Hi I am new to this platform and I was diagnosed back in 2019, I think. Anyhow I have never gone on medication only baby aspirin. But my oncologist will not allow my HCT to go above 44. Even if it is 45 They will do the phlebotomy therapy. Ugh cause now for last year they give me an IV along with it so procedure is longer (cause I had anxiety once and passed out during so now they do an IV both. Ugh
I love my oncologist but I feel fine if my HCT is a touch high. It is like once a month that I Am constantly being drained
My other levels normal HGB. Platelets. My RBC is slightly high
I have never had a blood clot and my energy level has improved as I am very exercise conscious and love to be on the go
After reading other postings. I am wondering if I should change oncologist since they constantly do phlebotomy when it rises above 44.
I am 75. And tired of dr appointments when I am actually starting to feel much better.
Should I change oncologist since??

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Replies to "Hi I am new to this platform and I was diagnosed back in 2019, I think...."

Both of the oncologists I had would let it go a few points over 45 to avoid having back to back phlebotomies. The research shows that most symptoms come with PV patients actually comes from the iron deficiency from the excessive phlebotomies. We can not take iron. It increases the red cells and causes the numbers to go even higher so they try to find a balance. I would def go to someone else. Medications on a low dose can make your numbers stay lower longer and that should be an option, depending on your other health conditions. Tell them to check your iron levels too. My first doctor did not, only upon diagnosis and then I had issues. Good luck!