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Hi sounds like you have a lot on your plate. I have PCV
Is yours with JAK2 mutation
I can't recall if it is secondary.
Anyhow I have been dealing with it a few years only doing phlebotomy which is draining like once a month.
I have refused to go on any medication and only take baby aspirin. But I try to eat all organic. And try to avoid sugar except natural fruits
But my oncologist will not allow me to have anything over 44. (I am constantly having to have phlebotomies which cause low iron ).
Sounds like your oncologist allows your HCT to be higher and is ok with it
My energy level has improved as I have focused on God as my top priority and he has truly blessed me
My health pinnacle that I try
1. Spiritual
2 water
3 sleep
4 diet
5 exercise
Have you been able to sleep and hydrate etc
I hope your journey will improve since you were recently diagnosed

Sunshine. 🙏

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Replies to "Hi sounds like you have a lot on your plate. I have PCV Is yours with..."

Thank you for your response. Since JAK2 test was negative, I chose to go with phlebotomy. Like you, I refuse new meds whenever possible. Due to kidney transplant in 2008, my transplant team contols my med/treatments. Cannot take any risk with negative interaction with my immunosuppressants. The Lord has blessed me with good health over 18 yrs post-transplant. I view this secondary PV diagnosis ust a 'bump in the road' and believe phlebotomy is the most prudent approach for me. May God's blessings immerse you with continued good health.