omg mine is 6 years too. Nothing helps.

Welcome to Mayo Clinic Connect, @jnharris. That is a very long time to have a non-stop headache. It sounds like nothing has worked so far, and I'm sorry to hear that.

Are you looking at seeing another headache specialist? What do you think will be your next move?

You may has many pieces to the headache puzzle.

I have had number 8 headaches / migraines 24x7 last 4 years.

Puzzle pieces
- Sinus headaches, infections. NeilMed Sinus Rinse to rinse the gunk out of sinuses 2x per day. 6 hour computer gps guided sinus surgery - 2nd ENT said Tricky, 3rd ENT we can help. Sinus Infections lead to antibiotics - which lead to learning about rebuilding Good Gut Health - L-Glutamine – all organs rely on good gut health.
- Tension headaches - tense neck. Neurologist recommended Physical Therapy Dry Needling. It like Acupuncture with low voltage to retrain the muscles – 23 weekly session I went from 28 degree motion left to right to 70 degrees (normal range).
- Migraine with Auras - different prescriptions, triptans, self injection, multiple migraine infusions five, eight different medication via IV – just had 1st Vyepti 100mg Infusion, headaches went from #8 to #4.
- a few more issues

Short answer - Find Headache Specialist in your area-
https://headaches.org/resources/healthcare-provider-finder/
Certifications (providers) – UCNS (750) and AQH (300)
Scroll to bottom of page – Select State – Search (US, US Territory, Canada)

Note: There were more AQH providers in May 2025, guessing they didn’t renew the AQH certification due to requirement – “50 hours CME over last 36 months focusing on headache medicine” – big investment of their time - but may still be listed as UCNS cert.

I'm trying to find “root cause” and not just chase the symptoms with medication. Which has lead me to researching Immunology. I found Dr. Akiko Iwasaki Yale Immunology.
Google "Comparative Analysis of Long COVID and Post-Vaccination Syndrome_ A Cross-Sectional Study of Clinical Symptoms and Machine Learning-Based Differentiation" _ medRxiv 8-14-2025

The post-vaccination syndrome (PVS) describes some of my symptoms.
" Question What are the similarities and differences between long COVID and post-vaccination syndrome (PVS)?
Findings In this cross-sectional study of 682 individuals, machine learning models identified distinct symptoms between long COVID and PVS. Long COVID was characterized by brain fog, altered sense of smell, and shortness of breath, while PVS was associated with burning sensations, neuropathy, and numbness.
Meaning Although long COVID and PVS share overlapping symptoms, they have distinctive symptom profiles, suggesting potentially different underlying biological mechanisms. Understanding these differences can guide clinical diagnosis and targeted management, and inform further research into their distinct immune and biological pathways."

It's a journey, best wishes on your journey!

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