Thank you for your reply Colleen. I have progessive bulbar palsy, and would like to make contact
with others traveling the same road to find out what symptoms I am likely to expext so that I can start planning for the future. I am a widow with four adult children and good friends who
support me, but when I reach the stage of not being able to care for myself I intend to move from my home into some residential care facility. I especially don't want my children caring for me, because they have their own families and careers to deal with. At the moment my symptoms are minor, but I would like to contact other(s) with a similar diagnosis for advice on day-to-day issues as the disease progresses.