Radiation and Cancer

Posted by gamaryanne @gamaryanne, Aug 2 9:18am

Many of us on this journey have CT scans every 3 months to monitor shrinkage or new “developments”. In addition, SBRT is often added as a Targeting solution for stubborn metastase. Once declared NED, scans are lengthened to 6 month intervals at some point.
Is there evidence that these frequent scans are inducing cancer spread long term?

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In reply to @mcharlesfrancis "73" + (show)
Profile picture for mcharlesfrancis @mcharlesfrancis

Thank you for your time and the info.

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Profile picture for optoboy @optoboy

What/how parameters were in place for you to choose a stage 2 treatment?

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Hi @optoboy. Welcome to Mayo Connect. I am not sure that I understand your question. Can you please elaborate? Thanks.

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In short, in one year I've gone from cancer free to stage 4 and given a year to live. How can that be? My oncologist has written me off and has not offered any kind of alternatives. So I'm searching for help. I've studied Envita's targeted therapy but can't afford 250k. Proton therapy is not a solution. Looking for help.

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Profile picture for optoboy @optoboy

In short, in one year I've gone from cancer free to stage 4 and given a year to live. How can that be? My oncologist has written me off and has not offered any kind of alternatives. So I'm searching for help. I've studied Envita's targeted therapy but can't afford 250k. Proton therapy is not a solution. Looking for help.

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What did you specifically get diagnosed with by the oncologist? No treatments were suggested?

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Profile picture for optoboy @optoboy

In short, in one year I've gone from cancer free to stage 4 and given a year to live. How can that be? My oncologist has written me off and has not offered any kind of alternatives. So I'm searching for help. I've studied Envita's targeted therapy but can't afford 250k. Proton therapy is not a solution. Looking for help.

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This is very unusual. Can you elaborate where your cancer is showing?

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Profile picture for optoboy @optoboy

In short, in one year I've gone from cancer free to stage 4 and given a year to live. How can that be? My oncologist has written me off and has not offered any kind of alternatives. So I'm searching for help. I've studied Envita's targeted therapy but can't afford 250k. Proton therapy is not a solution. Looking for help.

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I must add that many of us have been in your shoes.
My dx was 11/2021, stage IV.
Told the same thing…

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Profile picture for optoboy @optoboy

In short, in one year I've gone from cancer free to stage 4 and given a year to live. How can that be? My oncologist has written me off and has not offered any kind of alternatives. So I'm searching for help. I've studied Envita's targeted therapy but can't afford 250k. Proton therapy is not a solution. Looking for help.

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Treatment is best formulated by knowing your mutations. Do you mind sharing with the group what they are so that we can share what we did for treatment and how it may have or have not helped?

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Profile picture for optoboy @optoboy

In short, in one year I've gone from cancer free to stage 4 and given a year to live. How can that be? My oncologist has written me off and has not offered any kind of alternatives. So I'm searching for help. I've studied Envita's targeted therapy but can't afford 250k. Proton therapy is not a solution. Looking for help.

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I went from being told stage 1 to stage 4 in less than 1 month back in 2022. Given 2-3 months without treatment & one year with treatment. (This was at a prominent cancer center). Met my "local" oncologist 2 days after that prognosis & am still alive on Gemczar & Abraxane. Where are you located? That may help others help you. I live in Georgia, USA.

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Profile picture for 199 @199

I went from being told stage 1 to stage 4 in less than 1 month back in 2022. Given 2-3 months without treatment & one year with treatment. (This was at a prominent cancer center). Met my "local" oncologist 2 days after that prognosis & am still alive on Gemczar & Abraxane. Where are you located? That may help others help you. I live in Georgia, USA.

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I too live in GA and get treatments via Wellstar. I am treated with combo gemcitabine & abraxaine. Don't have a clue if its the right chemo mix or not. Looked into Proton therapy via Emory and was told by both an oncolgist and a radiation speialist I was not a candidate. Don't know where to turn now.

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Profile picture for optoboy @optoboy

I too live in GA and get treatments via Wellstar. I am treated with combo gemcitabine & abraxaine. Don't have a clue if its the right chemo mix or not. Looked into Proton therapy via Emory and was told by both an oncolgist and a radiation speialist I was not a candidate. Don't know where to turn now.

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I am in Georgia. I know many Pcan patients in the state and nearby. You are clearly with the wrong doctor. Sometimes we have to make tough decisions and go outside our box for other opinions. It’s time consuming but it is worth it!

Pls DM on how we can speak . Perhaps I can be of help. Not being located in the southwest or northeast does make it more difficult to find great physicians in this area, but there are some.

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