← Return to Negative NavDx Pre Treatment HPV16 Squamous Cell Cervical Lymph Node

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I have HPV+ SCC of unknown origin also. PET showed only one lymph node affected. A month ago I had the lymph node removed. Pathology showed no spread beyond the lymph node wall. My NavDX came back negative today. Tomorrow I am having surgery to remove the tonsil and base/rear of tongue on that side removed. The Dr is confident that he will be able to find the primary through pathology while we are in surgery. If he does I may be able to avoid radiation.

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Replies to "I have HPV+ SCC of unknown origin also. PET showed only one lymph node affected. A..."

My thoughts and prayers for a successful surgery and recovery! Best wishes

Please let us know how you are doing. Joe has been doing standard 7 weeks radiation with chemotherapy once a week. He has 2 weeks left. Radiation takes 10 minutes, chemotherapy 6 hours. Due to the fact that he had tonsillectomy , neck dissection with tumor removal and TORS they have been able to tailor radiator to a very small area. It has gone much better than expected. He gets chemo brain/ fog for a few days , he is tired but didn’t lose his sense of taste until this week. We can see the end. Hope this helps.MAC andJAC

Sounds like a similar situation to mine. I just had both dissection and TORS done at the same time. When they did the PET scan (or any other tests) where they any positive finding of your tonsil or back of the tongue?

For me the only positive finding was that my right tonsil "lit up" a little more on the right than the left, but from what the radiologist interpreted and my readings online, that is not clinically significant. Negative CT scan for tonsil and tongue, and when I was scooped during surgery, no positive findings.

The biopsy of my right tonsil from surgery "negative for infiltrative carcinoma" and "Actinomyces" (sort of an inflammation)

So still unknown origin. Would be interesting to see what they find during your surgery.

Eating will be "difficult", just have to be creative on what you can eat, and yes, pain meds are helpful prior to eating. It does get better, at least for me it did.