← Return to I’ve had a major setback due to Tacrolimus has anyone ever experienced

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@zimbro, First, I want to say that I am happy to read that you are making progress with your ability to walk a few steps without the aid of the walker. I hope that progress, even though slow, will continue for you.

I have not heard of anyone expressing a similar experience as you have described in the transplant discussions here on Connect. Are you a transplant recipient or do you take tacrolimus for a different condition?

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Replies to "@zimbro, First, I want to say that I am happy to read that you are making..."

I’m a transplant recipient 2 1/2 years ago. Been taking Tac from the begging with minimal side effects. Then when I got sick with high fever something happened but they haven’t really determined what. Doing some googling I discovered PRES is a bad side effect from Tac. I have an appointment with my Nephrologist in Sept maybe he’ll have some answers by then.