1. < Post-COVID Recovery & COVID-19
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If you have these symptoms would love your input.

Posted by rybren @rybren, Jun 30 1:30pm

Been to so many Dr’s, none have a clue.
Seems spike protein has messed me up, serious chronic fatigue, lately skin feels like I had a sunburn, burns and itches. Nothing visable.

Chonic fatigue hits me hard 1-2 days a week. Leaves me utterly exhausted for days, had every test imaginable.

Do others have these symptoms? What are you doing about it? Need some help.

Once again been to so many Dr’s, all types. They know nothing about this condition.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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dandre83 | @dandre83 | Aug 7 1:01pm

We are all just drifting…it’s good to empathize thank you.

REPLY
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vostie | @vostie | Aug 8 9:54am

I had alpha in March 2020 and have had some really good improvement with similar symptoms. I take one 500 mg Lysine a day to somewhat control the skin itching and the breakouts that I have. I also take 3.5 mg of Low Dose Naltrexone (LDN) for the fatigue and chronic inflammation. The LDN gives me almost complete pain relief and increases my energy. After taking it for four months, I am overall better and able to do so much more each day. I still have to pace myself as overdoing it will put me into bed for 2-3 days but I feel closer to my old normal...it is amazing!

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suefish | @suefish | Aug 8 1:08pm
In reply to @suefish "I’m still hoping to find a physician in my area who believes that long Covid is..." + (show)
Profile picture for suefish @suefish

I’m still hoping to find a physician in my area who believes that long Covid is
REAL!!

suef

Jump to this post

Thanks.

suef

REPLY
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bestrongnow | @bestrongnow | Aug 9 9:03am
In reply to @dandre83 "I haven't been the same person since I got the Covid vaccine boosters. That was over..." + (show)
Profile picture for dandre83 @dandre83

I haven't been the same person since I got the Covid vaccine boosters. That was over three years ago. I'm unable to do much except my job, and that is at risk because of what I am going through. I have a condition that was caused by the virus and/or the vaccine (dysautonomia), and one of my other symptoms is that it triggers my depression. Even though I'm on meds, they no longer help. This happens weekly, I'm either in a depressed state or coming out of a depressed state. A good week for me is a week where I feel okay three days in a row. That doesn't happen too often. I have other symptoms like extreme anxiety and other nervous system dysfunction. I can't regulate my temperature, I'm either sweating or shivering, get bad sleeps, plus other symptoms, including constipation, extreme brain fog, asthma, shortness of breath, exercise intolerance.

My Epstein-Barr virus load was off the charts, and along with above I have recurring Chronic Fatigue. One small ray of light, I went on a supplement called mitocore, which helped me almost immediately and I continue taking it, I believe it had a direct positive effect on my CFS. There are other similar supplements, I am not endorsing any brand, it's a fairly new class of supplements that help with mitocore function, hence the name.

The bizarre nature of what I/we have: I get symptoms on a regular interval, sometimes starting Sunday, definitely Monday, Tuesday, Wednesday-Thursday is either still bad or I am recovering, and then it starts all over again. I've had some patches of time feeling okay, but then get hit with Covid again and the symptoms start all over.

I am not joking about this.

I have to go to work feeling Iike I want to die. The medical community, so far, has no solution. We have spent thousands upon thousands of dollars with no results. I've been dropped twice by therapists so I don't bother wasting my time anymore with therapy.

I have tried NAD+, LDN, HBOT, plus others. Bottom line, these treatments only address symptoms and all bets are off when I am sick.

I hope sharing this information is helpful to others.

Jump to this post

I am so sorry you’re experiencing this! I have long Covid and now have a serious long-term lung disease. I can sympathize for sure. I hope you find some relief.

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1 reply
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dandre83 | @dandre83 | Aug 9 11:08am
In reply to @bestrongnow "I am so sorry you’re experiencing this! I have long Covid and now have a serious..." + (show)
Profile picture for bestrongnow @bestrongnow

I am so sorry you’re experiencing this! I have long Covid and now have a serious long-term lung disease. I can sympathize for sure. I hope you find some relief.

Jump to this post

I am sorry to hear that as well. So devastating to think we would all be healthy if that virus wasn’t released from the lab.

REPLY
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dandre83 | @dandre83 | Aug 9 12:05pm

Hi. I hate hearing this about you. I Just hate it. Writing about this stuff does help me but ultimately we are all suckers. Western medicine got us into this situation, it will not get us out, they don't want to admit the truth.

This is sad to say but I am on my final leg, balancing life, work, family...while being sick as a dog for 3 full years. As a single-income earner my family is about to fall, and all I can do is watch from this infected body.

Here is my reality, June 2021-present
-Sun-Tue or Mon-Wed, every week since I got the Moderna booster, I've been sick - covid/vax reactivates my depression, suicidal thoughts, my system goes haywire, sweaty, can't control body temp, dilated eyes, pure panic situation, etc.
-I am no longer myself. I've cut off my friends, it's too exhausting to maintain anything, really, much less a relationship. They can't understand what I'm going through
-I've tried more than a few treatments, HBOT, NAD+, nicotine, LDN, plus others. None help reduce my symptoms, thousands of dollars down the drain.
-Money at some point goes dry, I'm at that point.

No one cares, I probably wouldn't either if I was healthy. That's a cold hard fact. I will work to protect my family and then determine how best to live/not live the rest of my life. This is not a temporary problem.

I can't do this any longer.

REPLY
3 replies
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drbf | @drbf | Aug 11 10:19am
In reply to @dandre83 "Hi. I hate hearing this about you. I Just hate it. Writing about this stuff does..." + (show)
Profile picture for dandre83 @dandre83

Hi. I hate hearing this about you. I Just hate it. Writing about this stuff does help me but ultimately we are all suckers. Western medicine got us into this situation, it will not get us out, they don't want to admit the truth.

This is sad to say but I am on my final leg, balancing life, work, family...while being sick as a dog for 3 full years. As a single-income earner my family is about to fall, and all I can do is watch from this infected body.

Here is my reality, June 2021-present
-Sun-Tue or Mon-Wed, every week since I got the Moderna booster, I've been sick - covid/vax reactivates my depression, suicidal thoughts, my system goes haywire, sweaty, can't control body temp, dilated eyes, pure panic situation, etc.
-I am no longer myself. I've cut off my friends, it's too exhausting to maintain anything, really, much less a relationship. They can't understand what I'm going through
-I've tried more than a few treatments, HBOT, NAD+, nicotine, LDN, plus others. None help reduce my symptoms, thousands of dollars down the drain.
-Money at some point goes dry, I'm at that point.

No one cares, I probably wouldn't either if I was healthy. That's a cold hard fact. I will work to protect my family and then determine how best to live/not live the rest of my life. This is not a temporary problem.

I can't do this any longer.

Jump to this post

That sounds hormonal. I've had many of those symptoms since having COVID. After (going on) three years of that - and, oh, so much more - I have adrenal insufficiency. I had to push and push and push for help. I had labs for HRT with low DHEA. That was the first clue for my doctor. He was not interested in the crippling fatigue, panic attacks, sweating, lack of refreshing sleep. I could not stay hydrated. He's been aware for months. I've required IV fluids repeatedly. Finally, he ordered a cortisol lab. Practically non existent cortisol.

Very long story short, I'll see an endocrinologist late next month for more testing to determine the cause of adrenal insufficiency.

My message for you is that those symptoms indicate HPA axis dysregulation which COULD BE from hormones. Whether that's due to COVID, the vaccine, perimenopause, or menopause, I hope this gives you a new avenue to pursue that provides relief.

REPLY
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tkinder | @tkinder | Aug 11 12:58pm

It sounds like you are experiencing Post Exertional Malaise, a deep fatigue or energy crash after minimal or usual activity. “Pacing” can be helpful to avoid or lessen these energy crashes.
I have found good explanations on YouTube by searching “Bateman Center Post exertional Malaise” and other Long Covid posts by Bateman Center. Also good help on YouTube searching “Long Covid Treatment Explained A Comprehensive Patient Guide UT Texas”
That should get you started in some helpful information.
Low dose Naltrexone has good study data to support using it. Personally, I have had a good response to taking Valacyclovir, an antiviral. You need to find a physician who is willing to give things a try that have some evidence and dosing guidance available and do your own homework to know what you want to ask for. Search for a Long Covid Clinic in your area or that would do online tele visits to find better help.

REPLY
Profile picture for bestrongnow
bestrongnow | @bestrongnow | Aug 12 2:45pm
In reply to @dandre83 "Hi. I hate hearing this about you. I Just hate it. Writing about this stuff does..." + (show)
Profile picture for dandre83 @dandre83

Hi. I hate hearing this about you. I Just hate it. Writing about this stuff does help me but ultimately we are all suckers. Western medicine got us into this situation, it will not get us out, they don't want to admit the truth.

This is sad to say but I am on my final leg, balancing life, work, family...while being sick as a dog for 3 full years. As a single-income earner my family is about to fall, and all I can do is watch from this infected body.

Here is my reality, June 2021-present
-Sun-Tue or Mon-Wed, every week since I got the Moderna booster, I've been sick - covid/vax reactivates my depression, suicidal thoughts, my system goes haywire, sweaty, can't control body temp, dilated eyes, pure panic situation, etc.
-I am no longer myself. I've cut off my friends, it's too exhausting to maintain anything, really, much less a relationship. They can't understand what I'm going through
-I've tried more than a few treatments, HBOT, NAD+, nicotine, LDN, plus others. None help reduce my symptoms, thousands of dollars down the drain.
-Money at some point goes dry, I'm at that point.

No one cares, I probably wouldn't either if I was healthy. That's a cold hard fact. I will work to protect my family and then determine how best to live/not live the rest of my life. This is not a temporary problem.

I can't do this any longer.

Jump to this post

I am so so sorry. I really truly hope you find some relief and summary recovery.

REPLY
Profile picture for h2998sc
h2998sc | @h2998sc | Aug 12 5:48pm
In reply to @dandre83 "I haven't been the same person since I got the Covid vaccine boosters. That was over..." + (show)
Profile picture for dandre83 @dandre83

I haven't been the same person since I got the Covid vaccine boosters. That was over three years ago. I'm unable to do much except my job, and that is at risk because of what I am going through. I have a condition that was caused by the virus and/or the vaccine (dysautonomia), and one of my other symptoms is that it triggers my depression. Even though I'm on meds, they no longer help. This happens weekly, I'm either in a depressed state or coming out of a depressed state. A good week for me is a week where I feel okay three days in a row. That doesn't happen too often. I have other symptoms like extreme anxiety and other nervous system dysfunction. I can't regulate my temperature, I'm either sweating or shivering, get bad sleeps, plus other symptoms, including constipation, extreme brain fog, asthma, shortness of breath, exercise intolerance.

My Epstein-Barr virus load was off the charts, and along with above I have recurring Chronic Fatigue. One small ray of light, I went on a supplement called mitocore, which helped me almost immediately and I continue taking it, I believe it had a direct positive effect on my CFS. There are other similar supplements, I am not endorsing any brand, it's a fairly new class of supplements that help with mitocore function, hence the name.

The bizarre nature of what I/we have: I get symptoms on a regular interval, sometimes starting Sunday, definitely Monday, Tuesday, Wednesday-Thursday is either still bad or I am recovering, and then it starts all over again. I've had some patches of time feeling okay, but then get hit with Covid again and the symptoms start all over.

I am not joking about this.

I have to go to work feeling Iike I want to die. The medical community, so far, has no solution. We have spent thousands upon thousands of dollars with no results. I've been dropped twice by therapists so I don't bother wasting my time anymore with therapy.

I have tried NAD+, LDN, HBOT, plus others. Bottom line, these treatments only address symptoms and all bets are off when I am sick.

I hope sharing this information is helpful to others.

Jump to this post

It's GONNA get better.Our systems have been hammered big time with something that causes these inflammatory episodes...Dr Paul Anderson on youtube explains it all.What's causing what,and what's actully working for the affected.He's legit.xoxox.Stay in the fight.You will get through this...

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