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I was diagnosed with secondary PV back in March and 50 HCT is current threshold for phlebotomy. Based on my research, I am going to push for 45 or lower HCT target during my upcoming hematologist appmt. Because
I am dealing with radiation-induced right carotid stenosis (total blockage), I am very concerned with clotting
risk on left side. Any comments welcome.

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Replies to "I was diagnosed with secondary PV back in March and 50 HCT is current threshold for..."

My average HCT readings are quite a bit higher than your target. But I’m on a blood thinner (Eliquis) so I guess that’s why my doctor seems to be OK with it remaining at that level.

Hi sounds like you have a lot on your plate. I have PCV
Is yours with JAK2 mutation
I can't recall if it is secondary.
Anyhow I have been dealing with it a few years only doing phlebotomy which is draining like once a month.
I have refused to go on any medication and only take baby aspirin. But I try to eat all organic. And try to avoid sugar except natural fruits
But my oncologist will not allow me to have anything over 44. (I am constantly having to have phlebotomies which cause low iron ).
Sounds like your oncologist allows your HCT to be higher and is ok with it
My energy level has improved as I have focused on God as my top priority and he has truly blessed me
My health pinnacle that I try
1. Spiritual
2 water
3 sleep
4 diet
5 exercise
Have you been able to sleep and hydrate etc
I hope your journey will improve since you were recently diagnosed

Sunshine. 🙏

Sounds like you are dealing with a lot
I was diagnosed with PV
after having a stroke and two dvts while recovering in hospital. Immediately put on Eliquis and as soon as I was discharged my dr tested my blood and diagnosed me with PV I initially had two phlebotomies, then was prescribed hydroxyurea and have never had to have another phlebotomy (2018)
Dr wants my hct under 45
Never gone above 43
Oil/ hemat sees me and does bloodwork every two to three months