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Failed ablation

Heart Rhythm Conditions | Last Active: Aug 24 5:52pm | Replies (56)

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@bettycll
I’m one of the people living with untreated AFib for years. I’ve always felt for me the risk of treatment was greater than the risk of no treatment. Lesser of two evils. I have a long history of adverse reactions and complications. I just finally had a consult with an EP. He agrees that I have a lot of added risks with DOACs and ablation. He came highly recommended, takes on complicated cases and is willing to treat me. He said I would likely end up having 2-3 ablations overall. I don’t even want one. I do feel he’s the right EP for the job if I decide to move forward with PFA.

Like you, I came to this Mayo site for cancers and rare conditions but I’ve probably found the AFib threads and everyone’s experiences here the most enlightening. I have lung tumor ablations I need to take care of before any heart ablation. The EP agrees.

In the meantime, I need to talk to my oncology teams before I make my decision. I also have so many food triggers, I’m trying a very limited whole foods diet hoping to minimize episodes as afib frequently and duration have become a quality of life issue. I also have dysphagia from a neuro issue so eating fruits and veggies is especially challenging, nearly impossible. Lots of food allergies too. Losing my taste and smell 8 years ago after taking strong antibiotics is an added eating challenge. So far the extremely limited diet is helping but needs to help more. There are so many possible triggers other than food, I’m sure I can’t stop them all. I do appreciate all the real life stories that have been shared. If I ever have ablation I’ll share my experience. Despite all that, I’m still enjoying life in between all the medical stuff. Best of luck to all.

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Replies to "@bettycll I’m one of the people living with untreated AFib for years. I’ve always felt for..."

Hi Zebra - like you, I have also been weighing the "lesser of two evils". I, too, find everyone's experiences to be very enlightening and helpful as I navigate these issues.

I did talk with my oncology team. They were very supportive of "Pace and Ablate"; my oncologist called it a "One and Done", since so many of the antiarrhythmics I was given (which didn't work) conflict with meds they would use. That helped my decision.

I sympathize with the other issues you mentioned. My husband has dysphagia, so I am very aware how challenging that can be. Very few people are aware how difficult it is to have eating problems.

Good luck with everything! Continue enjoying life between medical stuff!