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ismatjahan007 avatar

I would deeply appreciate feedback on patients diagnosed with CMML

Blood Cancers & Disorders | Last Active: Aug 12 10:08pm | Replies (30)
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Profile picture for Lori, Volunteer Mentor @loribmt

Welcome, @rogelling. Thanks for popping into the conversation about your experience with CMML. You mentioned that you were diagnosed in May of this year. Was this discovered through the tests you had to follow-up on your low platelets and anemia? Are you currently on any treatment plan or are you in an active surveillance period?

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Replies to "Welcome, @rogelling. Thanks for popping into the conversation about your experience with CMML. You mentioned that..."
rogelling | @rogelling | Aug 10 5:38pm

My cardiologist finally decided after 2 years of 80,000 to 120,000 platelets and Hgb of 12.5 that I should see HemOc. She ran aNGS and hit TET2. She also noted the monocyte count was over 1.0x3 for over a year. She ordered the bmb which showed CMML without blasts. She tells me is stage 0, no treatment needed. I'm in the CHIP clinic.
As far as symptoms, the fatigue and dizziness have gotten worse. I have two prosthetic heart valve so the fatigue has been there for years. I used to do fitness and cardio 3 times a week for 30 years, I had to cut to 2 a week and feel very tired those days.

Hope that helps. I'm here anytime.

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