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Thanks for sharing. It good to hear about the rehab part, especially the exercise. It seems like with anything I do, I am trying to catch my breath. My doctor did make a referral to Mayo, but appointment is October 31st with a whole day of testing. I am hoping to find more answers then. I was wondering too about the diet as I am sure that will have to change as well. Thanks for the insight as it makes me feel a little better. Best of luck to your husband as I do feel his pain. Thank you!
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Also. Do a little research on the drugs Ofev and Esbriet. I believe Esbriet has less side effects. You need a good amount of protein with these drugs. We opted for 3x a day instead of one horse pill
Thought it would be easier on the stomach. Bless you and keep your chin up!!!
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Diagnosis of any serious lung disease always comes with more questions than answers. And usually a fair amount of fear of the unknown. That was how I felt in 2018 when I was (finally, after years of declining health) Bronchiectasis and 2 lung infections.
Mayo Connect and the wonderful people here were a great help to me, providing resources and support while I waited for answers from my doctors.
I see several people have provided links, here is one I often turn to:
https://www.lung.org/lung-health-diseases/lung-disease-lookup/pulmonary-fibrosis/patients/living-well-with-pulmonary-fibrosis
Good luck with your appointment at Mayo Clinic. I hear from friends living there that you need to prepare yourself to enter a major construction zone, so be sure to contact the Mayo Concierge Services for the latest updates the week of your appointment.
Hugs to you as you and your family adjust to this new reality.