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Does anyone have gluteal tendinopathy? Any successful treatments?
I have gluteal tendinopathy and am getting to the point that I can hardly walk. I've been to 8 doctors and had injections of several kinds to no benefit. I've been to physical therapy at least 10 times with very little benefit (I must have done 10,000 "clam shells" and "bridges").
The only thing that helps some and gives me a few hours of reduced pain is hydrocodone. I don't know if there's any point in pursuing more treatment.
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Your doctor needs to get with it!!!! Naltrexone has been used for pain management since 2018. Its original purpose was to help drug addicts and alcoholics get through the withdrawal symptoms. If your doc hasn't already researched it and gotten back to you, it's time to change docs or at least send them a link to an article about Naltresone LDN protocol. BTW I also learned about gluteal tendinopathy during my quest to figure out why I am in so much pain, from the Cleveland Clinic website. Now I have a folder of links to articles and anecdotal reports and share it with whoever needs help. Gluteal tendinopathy is no joke, and is, for me at least, extremely painful and at times disabling. Oh, BTW I'm 72 years old and a very well-informed health care consumer. Good luck to you bunstuffer.
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1 ReactionI was astonished that she said that none of their docs use it. This is the pain center at the largest hospital in the state! I have contacted my PCP and he will likely be familiar with it. He told me when an ER neurologist misdiagnosed my serotonin syndrome as a stroke, that specialists treat what they know. I have received better and more accurate diagnosis and treatment from him than from a stable of specialists.
Try to find a therapist that does MFR deep myofascial tissue release. It sounds like it would be helpful for you. Also look into the possibility that you may have gout. Buy a $20 supplement called ZAZZEE (on Amazon) tart cherry capsules. If that helps you and you will know right away then you have are having an inflammatory issue. After 30 years of suffering, with the kinds of things you explain they were all tied together because I had gout arthritis. The doctors never looked on the osteoarthritis because it was so prevalent. I’ve had many joint replacements Successful, and I’ve had many injections which have been helpful. The injection stopped working when it’s time for surgery however, the tendinitis and connective tissue pain was entirely related to inflammatory pain which went on undiagnosed. The medical industry is not good at looking at a specific and at the same time standing back to look at the hole. They no longer take a long-term approach with our bodies and they just look to stick Band-Aids. They just look to find things to treat on x-rays or MRIs. I can’t tell you how I suffered for 30 years with gout. That was after I had had Gout flares sending me to the hospital with pain in my 40s. I am not paying free at 68 because arthritis takes its tolls and so does degeneration. However, my attitude is way better, knowing that being on gout medicine (allopurinol), which can put me to a dead stop if the weather is wrong is now remedied. I supplement all this by going two times a month to a good deep tissue myofascial release therapist because evidently when we get older, our muscle fascia glues together and moves as a unit, thereby stressing the tendons and ligaments and connective tissue.
I will be praying for you!!! THAT l can do well.
Please take care of yourself first and foremost. Without doing that, you can't take care of others.
Susan
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2 ReactionsI have now had to start using a walker to feel secure when walking outside my home. Going from standard cane to walker happened in about 6 weeks. I feel like there's a spike going into the center of my left butt cheek. Every time I put weight on my left leg a sharp pain courses through my hip and thigh which often makes me nearly lose my balance. Thanks to all of you for the encouragement and good suggestions as well as the prayers.
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1 Reaction@dpadg, thank you for all the information! You certainly weren't rambling; all of it is helpful, especially as you sound an awful lot like me (scoliosis, severe lumbar stenosis, slipped discs, arthritis all over the place). But my sense is that something is also wonky in my right glute, and I can't get anyone to pay attention to that possibility. Very interesting that a neurosurgeon is now solely doing pain management -- I think you are very lucky to have found this person, and I wish there were such a creature here in Austin, Tx. As for PT, it seems that every exercise I'm given makes things worse, so thanks for telling me to nix the clams, which are always on the menu! 🙂
If, by any chance, you have your MRI report handy, would you be willing to take a look at it and let me know exactly what your order was for? I seem to need to make very specific suggestions to my pain doc!
Also, when you went back to LDN after stopping, did you go straight to 4 mg, or did you have to titrate up again?
Wishing you all the best, and again, thank you for your response!
How do the medics know it is tendinopathy. Have they done an MRI showing tears and other damage? If everything you have done so far has come up with zero then you are fixing the wrong place. Let me give you an example. For many years I suffered from lower back pain. I did all the right things with the exception of spinal blocks. No thanks. After twenty years I saw a myofascial therapist who immediately diagnosed overly tight ilio psoas muscles. He worked on me for 3 sessions and gave me exercises to do ( very simple ones too) and after 20 years of everything else under the sun aimed at the lower back itself, presto no more pain. My guess is your tendons are inflamed and angry because of the way you sit, or walk or sleep. Sitting is my first choice but I don't know you. Doctors and others in the medical profession are not trained to see much beyond what they learn in medical school and that isn't very much except pushing pills. Find a John Barnes fascial therapist or a Tom Myers Anatomy Trains practicioner or a Rolfer. With a 10 minute exam my bet is that they will come up with the root cause. Just for fun google can a tight psoas muscle cause gluteal pain ?
I fell hard skiing nine years ago. Landed very hard on lower back and buttocks. Limped around for about a year and a half until a very thorough neurologist prescribed a cocktail of drugs. Brought my pain level down quite a bit. However, even to this day whenever I sit it feels as if I am sitting on two hockey pucks. No doctor has ever investigated this. I currently have developed severe peripheral neuropathy(so they tell me via EG). I am wondering if I could have this condition. How were you diagnosed? Were you able to pinpoint a cause? Would appreciate any feedback?
Thanks and have a blessed day.
I was never diagnosed by a doctor. The only medical professional who has told me I have gluteal tendinopathy is my physical therapist. I was told for years that I had a strained muscle and did hours of physical therapy to no benefit. I'm still doing PT with no benefit. I've even been to a major university hospital/clinic and was referred back home to a practice I had previously used to get more of the same injections that didn't work before. I tried to get into Mayo but wasn't accepted. If I were 20 years younger(I am 78), I think I would be more likely to receive effective treatment, although I've been trying to get relief for at least that long.
As I stated before, this started 50 years ago when I fell while in the Army. It didn't start bothering me very much until I was about 50. It has gradually gotten worse since then. I feel like doctors haven't really taken me seriously since the orthos I saw at Kirk Army Hospital at Ft. McClellan (which no longer exists) when I was first injured.
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1 ReactionYes, I have had several MRIs, CAT scans and dozens of X--rays and ultra sounds. They never tell me the results . I drove 50 miles to see a myofascial therapist but didn't have any luck there either.