Connect
← Return to I would deeply appreciate feedback on patients diagnosed with CMML
Discussion
I would deeply appreciate feedback on patients diagnosed with CMML
Blood Cancers & Disorders | Last Active: Aug 12 10:08pm | Replies (30)Comment receiving replies
Dear Lori,
It was mistakenly mentioned by me as CML .In fact my sister has CMML.
She had been on hydroxy urea since May 2025. As her WBC and platelet counts have been fluctuating. Doctor now suggests intravenous chemo additionally.
So far,she is generally speaking,fine except for some itching and body ache.
I just wanted to hear experiences of those who have gone or going through CMML.
I remain in deep appreciation and gratitude.
Ismat
Replies to "Dear Lori, It was mistakenly mentioned by me as CML .In fact my sister has CMML...."
Connect
Hi Ismat, There are so many abbreviations for diseases, it’s a challenge to keep them all straight! CML or CMML, you’re a wonderful advocate for your sister’s health. It’s always so heartwarming to see this wonderful forum in action with how members rush to the rescue when you’re looking for shared experiences. So thank you to @ sme225 @lmoser325 @rogelling for talking about their CMML journeys.
I know the term chemo can spark a great deal of fear. But chemo can help kill the leukemia cells in the bone marrow and allow normal ones to grow back. If your sister’s cancer isn’t responding as quickly with the hydroxyurea (HU) as her doctors would like, it can be helpful to have an additional chemo to boost the effect.
I’m glad she’s doing well otherwise. The itching is annoying for sure. I remember that with my own leukemia odyssey…drove me nuts! But that actually got better once I started my chemo. I hope your sister does well with the new treatments. Please keep me posted. Hugs.