Hi Chuck, my husband 77 was just diagnosed with Pulmonary fibrosis, emphysema and 2ndary pulmonary hypertension. We live in a rural Michigan area and there are no pulmonary doctors. I called a pulmonologist who specializes in my husbands disease and the appointment was for 1 years from now. I told them that that was unacceptable and they got us in for November which is still too long. We will travel to Mayo clinic next week to be seen. Have you started pulmonary rehab? We don't have that here in the U P where we live either so we travel 1 1/2 hours to Wisconsin 2x a week for the next 12 weeks. Rehab is the only place that has given us some hope. If you have a Mayo near you, I would go there. They got us in fairly quickly. My husband is on 3L oxygen with activity. He is using treadmill at home and hand weights. We are slowly switching to a Mediterranean diet which is supposed to be anti inflammatory. He is on Esbriet to slow the progression. It is an entire lifestyle change and it is scary!!