You will feel better knowing your diagnosis exactly - speculation can wear on us. I know for me that is true even after a definitive diagnosis. I asked my Hem/Onc how “long” I have already knowing what I found on Dr.Google statistically gave me 2 years (I am 77 and have AML).
He reminded me that statistics are rarely current. We are all individuals. With the tremendous strides that research is making in AML we have more opportunities than ever before with the drugs they have developed even in the past few years. Venclextca being one. I was diagnosed in March of 2024. I had an MRD (measurable residual disease) blood test this July and it showed I am in deep remission. They didn’t detect any of my FLT3 or NPM1 mutations! My MD gave me the option of discontinuing treatment or continuing with Dacogen (1 day) and Venclexta (2 days) every 5-6 weeks. Since FLT3 mutation can be tricky to detect I am playing it safe and staying with treatment as well as weekly blood draws as although I am in remission my numbers continue to be below normal. I have posted previously that although I was a candidate for Bone Marrow Transplant (the team found 5 matches) I elected not to go that route. The quarantine time (100 days) was problematic for me as I did not have the necessary support. Wishing you guidance as you travel through and learn your diagnosis. The best place to start your future!