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ismatjahan007 avatar

I would deeply appreciate feedback on patients diagnosed with CMML

Blood Cancers & Disorders | Last Active: Aug 12 10:08pm | Replies (30)
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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @ismatjahan007, A few weeks ago we had a conversation about your sister who was diagnosed with CML. Has her situation changed?

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Replies to "Hi @ismatjahan007, A few weeks ago we had a conversation about your sister who was diagnosed..."
ismatjahan007 | @ismatjahan007 | Aug 9 10:22am

Dear Lori
It was my mistake. It is CMML. My sister was on hydroxy urea now the oncologist advises intravenous chemotherapy alongwith hydroxy .
I would like inspiration from stories of others who have gone through this..
It is always a big strength to learn from others..Deep gratitude!

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ismatjahan007 | @ismatjahan007 | Aug 9 10:09pm

Dear Lori,
It was mistakenly mentioned by me as CML .In fact my sister has CMML.
She had been on hydroxy urea since May 2025. As her WBC and platelet counts have been fluctuating. Doctor now suggests intravenous chemo additionally.
So far,she is generally speaking,fine except for some itching and body ache.
I just wanted to hear experiences of those who have gone or going through CMML.
I remain in deep appreciation and gratitude.
Ismat

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