Thank you so much for all of the responses. I really appreciate you giving up your time and support. There's a lot of information to mull over and some very useful points. Hearing from those who are in or have been in a similar position helps immensely. Thank you.
After 7 years since my first attack of pancreatitis, I have had numerous attacks since, last year, I had a total of 9! This has badly damaged the whole pancreas. I have only just been prescribed Creon as my body isn't producing enough enzymes, and my weight loss is now about 2 stone, down to 50 kg. Being a vegetarian, I have looked for vegetarian alternatives, but there aren't any suitable, so once I have more of an understanding of how to take Creon effectively, I will start it.
After speaking with the consultant, my IPMN is growing, now 32mm and there is no timeline when this will turn cancerous, but it will, I could continue the way I have been going with the attacks at home with the help of strong pain relief and MRIs and endoscopies. This all takes a toll on my body and mental state. This is an incredibly hard decision to make as I'm scared. My worry is the surgery itself for the total pancreas removal as I live in Devon, England, and Derriford Hospital only performs 5 or 6 of these operations per year. So, this is not a decision I can make lightly, I'm thinking of asking for a second opinion and looking for hospitals that specialise. If you could suggest any uk pancreas professionals you can personally rate, I'd appreciate that.
Any more advice or thoughts welcome.
I can see that surgery seems to be the best and really only option. I'm just so scared of undergoing a surgery that is very rarely done with little experience especially in my area. Therefore I would have to travel and be away from my family .