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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: Nov 8, 2025 | Replies (234)

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Hi Lori -- Thanks for asking about my sweet wife. There's a story to tell, but, overall, things are looking up, thank the good Lord. As you know, Rachel's blood counts have been dwindling for the past 18 months. She's had several transfusions and plenty of Procrit shots. What you don't know is that, for the same 18 month period, Rachel had a benign tumor inside her spine which was pressing on the spinal cord, causing lots of pain and numbness. According to most doctors, the tumor has nothing to do with the MDS and the blood numbers. Two weeks ago, an amazing "miracle worker" surgeon, Dr Kelly Gassie, removed the tumor. There was a lot of doctor clamor before the surgery because low WBC counts would certainly lead to post-operation infection. Nevertheless, Dr Gassie agreed to Rachel's wishes and removed the tumor and, after two weeks, only a faint UTI (from the foley) is present. Further, what is really wonderful, is that our first CBC after the surgery shows marked improvement in blood numbers. One hematologist said "Your bone marrow is responding to the tumor removal." I will wait for a second CBC before popping the champagne, but I sure like hemoglobin at 9.3. It has been as low as 5.2.

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Replies to "Hi Lori -- Thanks for asking about my sweet wife. There's a story to tell, but,..."

Aww this is such wonderful news about Rachel and it’s definitely tugging at my heart strings! Just the way you’re referring to Rachel as your sweet wife did me in! You two are a united team from the get-go. I’m so happy that surgery to remove the tumor on her spine was so successful. Oh my goodness…what an amazing surgeon to work miracles there! And to see a response in the blood numbers is a gift x 2! If that second round of numbers is good and you’re going to pop the champagne cork, please share a glass with me as we toast Rachel, her doctors and you for the happiness we all share for your sweet Rachel. She’s beautiful! Seriously, ask her the secret to looking that lovely in a hospital gown, no less! Please hug her for me! ☺️🙏💞

You go, Girl! We're all with you!

You are looking lovely, Rachel. Prayers for continued healing.