← Return to Diagnosed with granulosa cell (GCT) ovarian cancer

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I had a similar circumstance to you all 7 years ago. As I was told by University of Kansas Cancer Center and a second opinion at the Mayo Clinic that my full hysterectomy and removal of multiple lymph nodes was successful. Chemo was not recommended for me and I was told to stay away from hormone therapies. Recovery was only for the surgery. I felt positive and good. However, granulosa cell is aggressive and has a high rate of return somewhere, sometime - but in a majority of cases, I was told and read, it is within 5 years. I was watched and tested 2x per year with blood draws for Inhibin A and B. Passed 5 years with flying colors and went to an annual exam and blood draw - with the year 7the year blood draw, my inhibin A came back with high 800's and inhibin b was less than 10. Took a second blood draw a 5 days later and inhibin A was now 37 points higher, but no change in inhibin b. Did a pelvic CT scan and results came back without any concerns. On Monday I will have a "thigh to eye" PET & CT scan and also have an MRI scheduled for early September. I feel great, no pains or issues. Should be an interesting story. I do feel my care team and KU is doing all they can. I am researching for the "just in case" nothing is showing on the various scans, for other methods of determining what is causing Inhibin A to rise.

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Replies to "I had a similar circumstance to you all 7 years ago. As I was told by..."

@juarez05 Hello, and welcome to Mayo Clinic Connect. It sounds like you certainly did all the "right" things by going back to KU for your periodic cancer surveillance appointments. It's great that you passed that 5 year mark that is considered so important. So now you return for annual exams? Again, it's worth saying that this rise in your blood draw for Inhibin A and B were found because you return for your appointments.

I do hope that after your imaging of PET/CT on Monday, August 11 (?) that you will have more information. This is an ambiguous situation as you await imaging. How fortunate that you feel that your cancer care team and University of Kansas Cancer Center are doing everything possible for you.

How are you feeling about all of this?