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I’m sorry you’re dealing with so much, but glad you found LDN - and someone to write you a script. When my rheumatologist first wanted me to try it, I reached out to a pain management specialist for an appt. They asked what it was I needed, said they’d “review my file” and then said they’d get back to me. A week later they called back and said unfortunately the doctor couldn’t help me. I couldn’t understand why and called my doctor back. My rheumatologist explained that some of these pain management doctors only want to schedule appts where they’ll give shots or procedures as they can charge the insurance much more for a cortisone shot than they can for a script so they won’t book those kinds of appts. I remember being really angry that I wasted a week and was still nowhere. My rheumatologist is now licensed to write her own LDN scripts for her patients because of that! So for anyone else, if you call a pain management doctor who wants to call you back “after reviewing your file” with the doctor before they’ll book you an appointment, now you know the score. Keep making calls meanwhile!!
Replies to "I’m sorry you’re dealing with so much, but glad you found LDN - and someone to..."
IMO from what I see in EOBs a doctor who accepts Medicare patients gets lots more percentagewise from an office appt than they do from anything else.
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In theory a pain mgmt doc should be the most qualified to write such a script and should be willing when everything else has essentially failed. A year ago last October, I essentially started over from square one trying to get some relief from my current lower back pain. Went to Sports Med and was punted to pain mgmt and from there to PT and back to pain mgmt. The amount of time wasted between appts with nothing to show for it is disheartening. How anyone can say that a burning pain which has its focal point at or near the top of the pelvic bone is nerve pain is astonishing. Unless there is a nerve which is running through there and being pressed on by a muscle, I don't get the connection. I know what the MRI and CT scans indicate, but to me the pain doesn't seem to be consistent with those findings, esp. since I had similar pain for years before my L1-L5 lumbar procedure.
Frankly, I wish some docs would read through some of these stories and post anonymously about what they think is going on.
I would add that for years I have been battling CVI and my PCP is a vein specialist. Some months back I was told that I was essentially SOL for any relief. My problem is quite evident to anyone who can see the characteristic discoloration of the skin that it causes. Finall in late July they did more ultrasound testing and now there is an endovenous based procedure that can be done, but first I need to have a ABI. That is done in cardiology and there is a 2 month wait. Just more delays, they never end.