Hello Maxine and Walt
Your story is very similar to ours ( my wife Kari) like the time line, daughter in nursing as ours is at UNMC omaha as well, also all the meds, Dr appointments etc. see our story below
First read the 2018 story from Maxine and Walt on our journey with DBS and PD wondering how that’s going? Any advice etc?

Our Real Time our journey Gary and (Kari with focal dystonia left foot, and presently last few months had DBS surgery!)

•Kari was diagnosed in 2016 with Focal dystonia left foot at UNMC Omaha Ne

•We went through the hoops, Evaluation
, Dr appointment for 7 years, Meds
carbidap levadopia, amantadine
And many others about 15 pills daily

Taking Botox every 3 months

Now update August 2025
Kari’s had 3 part surgery at UNMC omaha ne with Medtronic 2 leads right and left side of brain and 2 battery packs left and right side of chest

Jan 2025 DBS physical testing

June 2025 1st surgery left insertion side one overnight stay

July 13 2nd surgery right one overnight night

July 23 2025 two batteries pack left right side clavicle
Waiting period to get stitches out August 14 battery turned on last week August

Any advice from here on regarding
1) results after DBS
2) complications to be aware of that medical does not tell you
3) Those I’ve had DBS are you still taking Botox?
4) what is Medtronic erosion?
5) anyone know the percentage of replacement of Medtronic leads if they don’t work how many people have had to do that approximate?

If you want to email with questions is great
Love to message you just don’t know how
Gary