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Immune Thrombocytopenia Purpura (ITP): What helps?

Blood Cancers & Disorders | Last Active: Nov 5, 2025 | Replies (206)
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Profile picture for cheech29 @cheech29

hello; i am also on promacta; 100mg a day. my count stays around 30-40 plus 5mg of Prednisone daily i have been on this for at least 2 years now with no help in site. i do not want to take out my spleen since this is no guarantee. has anyone else tried something else; i have tried every other medication like promacta plus infusions

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Replies to "hello; i am also on promacta; 100mg a day. my count stays around 30-40 plus 5mg..."
Lori, Volunteer Mentor | @loribmt | Aug 8, 2025

Welcome to Connect, @cheech29 This journey with ITP has certainly been frustrating for you and you’ve certainly run the gamut with medications and infusions. It’s encouraging that promacta is holding your platelet counts relatively steady. Is the prednisone a level you’ve reached after a taper from a larger dosage? Will you eventually be able to use just the Promacta?
Were tests run to see if there were any underlying conditions like rheumatoid arthritis, viral infections like EBV, Hepatitis C or H pylori bacteria?

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