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Treatment of Giant Coronary Ectasia?
Heart & Blood Health | Last Active: Aug 8, 2025 | Replies (3)Comment receiving replies
I have repeteadly been told that the attending interventionist has been “trained” on it and therefore a referral to a specialist won’t happen. I confirmed that “trained” meant some reading and they have never seen or treated a giant ectasia.
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To answer as to how am I managing, I have a cardiac alert service dog and live every day with never ending anxiety. I have chest pain pretty much every day and take nitroglycerin when it feels strong. Each episode brings some panic and I loathe living with this.
I went from setting Guinness world records to being sedentary. That’s a huge change and I’m surviving but not living.