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Has anyone else experienced issues with a newly implanted pain pump?
Chronic Pain | Last Active: Aug 9 5:10pm | Replies (49)Comment receiving replies
@jeffspain. Did they start you out at 3 mg per day, right off the bat? I would hope not! I had a really low dose to start(can't remember exactly, but probably around 0.5 mg). Each visit saw it increased by ten percent. It seems to take a while to reach each patient's unique therapeutic dose. I have seen some as high as 5 or 6 mg per day to get pain relief. Others get relief at less than on mg per day. 3 mg may be too high for you. I am at 0.9 mg per day and rising. Doc won't increase more than ten percent per month.
Replies to "@jeffspain. Did they start you out at 3 mg per day, right off the bat? I..."
Yes, I just want to add I used AI on my dose and they said they considered it a low does not a high one. 3.002mg a day Hydromorphone. Just saying. Thanks again.
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Hello. I would not know what is high. Thank you for your reply. My papers in front of me here read 24 Hour Dose 3.002mg/day. 24 hr 0.125mg/hr. Hydromorphone. Monday-Sunday: Simple Continuous. 12:00 AM -12:00AM. All I now is my Groin,Hip, Legs and Feet along with Toes burn. When I feel cold and cover up I burn more. Wear socks my feet burn more. Still have the back pain. Was worse when they had me on Fentanyl or just as bad. Before Hytromorephone I had Methadone at around the same 24 Hour Dose 3.000mg/day. That made burning so much better but had some stomach upset and felt a a little strange. That was given to me after being on Fentanyl at 4,800.00 mcg/ml.) Now I think I want to go back to Methadone because of burning but a Tad Weaker Dose. Can’t talk to Doctor or PA on phone. Have to make an appointment. Nurse is a very ugly person inside and won’t give you the time of day. A week ago she said she would call me back maybe in a few days. All the money they made off of me in 20 years and they just seem like they have no time for you because they’re on to the next person. I know they are busy but I wish I would of never put in the pump in the first place. Was never the magic wand they made it out to be. Twenty years of chronic pain has had a toll on me and you can’t even talk to the Doctor even after he put in my third pump. If you want to see him you get at least a shot. Same with PA. They always want to stick or poke you in some way. Won’t give you a couple of minutes even on the phone. Drive 75 miles in pain at 70 years of age. It’s all about the money. Sorry I’m frustrated and feel used and not very well taking care of. Years back I even tried to come up to the Mayo Clinic and they turned me down after two failed back surgeries in 2001 and around 2004. I thought these Doctors took a oath. I seen many years of wasted insurance cost and me being the Guinea pig. In all them years I never received a phone call to see how I was doing. Would be nice if they really cared after the door hit you in the ass. Thank you so much for your reply.