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What are my chances that MGUS turns into multiple myeloma?
Blood Cancers & Disorders | Last Active: Aug 21 1:06pm | Replies (32)Comment receiving replies
@dtrgran59 I'm 71 and have had IgA Kappa MGUS for 9 year; my approx. risk of progression is 9% based on 1%/year and bloodwork. I am asymptomatic. My bone marrow biopsy last summer yielded 15% plasma cells, which should be SMM, but plasma cells are sticky and they may have hit a plasma concentration. My oncologist says still MGUS. I eat healthy (mostly FODMAP), get enough exercise, am normal weight, avoid stress, do fun stuff, and take about 10 gm/day of bioavailable turmeric (Qunol brand but there are others). The curcumin in turmeric slows growth of the deranged plasma cells, at least based on published research. Hopefully the MM research will continue and not be cut like other research; MGUS is a waiting game so many of us are hoping if MM hits us it will be after new research and treatments are through clinical trials.
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@kayabbott
Good morning. I am also 71 and diagnosed with IGM MGUS in 2021. My BMB was normal and my light chains are normal. I have been taking the Qunol Enhanced Absorption Turmeric on and off for several years which really helps my degenerative discs in my lower back. I have read studies that turmeric, milk thistle and even green and black tea can inhibit absorption of iron and my ferritin level did drop from 50 to 25 with no iron storage in the BMB. Did your BMB show the same? My hematologist stated that it’s not uncommon to find no iron storage in women. Has your iron ever been affected by the high dose of Turmeric? Two encouraging signs on my last blood work. My IGG is now in the normal range (IGA still too low) and my M-spike moved down from .4 to .2 now back down to levels 2 years ago. However, because my IGM is in the 700+ range and is continuing to climb about a hundred points a year, my hematologist is concerned that Waldenstrom’s is on the horizon. I recently increased the Qunol dosage from 1500 mg to 2000 mg and will keep increasing it slowly. I have had to start taking iron supplements which seem to be working as my ferritin was 36 on my last test. Thank you in advance for your input.