Grover’s Disease

Posted by sharfar @sharfar, Mar 13, 2022

Hello-I am a 54 year old, active female recently diagnosed with Grover’s Disease. It started shortly after having an MRI. And it started on my neck and went up behind my ear. It is now on my stomach and back and arms. Is there a correlation between the MRI and Grover’s? I’m also a runner but have been running in freezing temperatures, not heat as suggested in much of what I’m reading.
Thanks for any help you may offer including any suggestions on helping to get rid of it.

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My initial outbreak was a month after an MRI. I had an MRI at the end of November and now I have another outbreak about a month later.

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Profile picture for siesta1715 @siesta1715

Yes, regular cilantro. If the organic cilantro looks fresher I buy that.

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I am new today to GD. How do you use the cilantro?

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Hi, I am new to GD today. How do you use the Cilantro?

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Profile picture for woody92354 @woody92354

Hey Hawk. That's because derms don't actually have to live with this. I have an appt. w/mine next week, and he's going to hear all about cilantro smoothies (I'm actually having one as I type this) & how all his pills & OTC lotions did nada....Good luck to you, my friend!

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What's your recipe for the cilantro smoothie please. New to GD . Thank you

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That is very interesting. I used to be an MRI/Radiologic Technician and was diagnosed with Grover’s disease last year.
I used to hold babies when they needed X-rays and have MRIs to test the equipment. Wondering about the correlation?

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Profile picture for yuliya91 @yuliya91

Thank you so much. The cilantro is regular, not Italian, right?

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Some refer to Italian Parsley as cilantro, but it is not cilantro, it's just a different variety of ordinary parsley.

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Profile picture for skinonfire @skinonfire

My initial outbreak was a month after an MRI. I had an MRI at the end of November and now I have another outbreak about a month later.

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What kind of contrast was used for your MRI? Wouldn't that be more likely to be a trigger ?
MRI's don't have radiation exposure.

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Profile picture for sophiep @sophiep

Do you have any idea how your doctor got you approved for Dupixent to treat Grover's disease? I've talked to my dermatologist several times about trying it, but since it isn't approved for Dupixent and a pathology report must be sent I wouldn't be approved. If you can find out and let me know I'll forever be in your debt. After a year of scratching head to toe only Prednisone has given any relief, but is short term and thining my skin that everything results in a bruise or a break in my skin....have to walk around with bandaids in my pocket!

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Hello,your dermatologist has to use an Eczema diagnosis as the primary issue so the insurance company will approve it

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Profile picture for patricia0456 @patricia0456

What's your recipe for the cilantro smoothie please. New to GD . Thank you

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Simplest way is simply create a tonic, put 1/2 bunch fresh cilantro, trim 1/2 inch off cut stem ends and discard then put washed stems and leaves and about 1/2 cup of water in good blender (Ninja Professional 1000w is a good value and excellent at pulverizing and liquifying). Chugging it down holding your breath will minimize the taste. I've tried adding fruit and so on but there is no way to disguise the taste.
I feel such sympathy for all of you still suffering. As I have mentioned a group of us boggled about our results trying cilantro and it helped about 40% of us. I was one of the lucky ones, still am.

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To disguise the taste you can try three things: sweet cherries, pineapple and best for me personally is kiwi.
I buy it frozen, defrost it, and mix it with fresh cilantro in a blender. I also add some pure organic black elderberries juice, not so much for the taste, but every healthy. And like this I make about a liter, and drink a cup twice a day.

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