← Return to Maintenance therapies after consolidation chemo ?

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Thanks @loribmt. I have acute myeloid leukemia, FLT3 negative and NPM1 positive. No unfavorable mutations of which I’m aware and no current plans for a BMT.

My doctor has so far indicated a preference to just watch and wait for potential relapses. I’d prefer a more proactive approach if possible and wondered if anyone in this support group, who has not undergone a BMT, has had experience with maintenance therapies.

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Replies to "Thanks @loribmt. I have acute myeloid leukemia, FLT3 negative and NPM1 positive. No unfavorable mutations of..."

Hi @pefishback. I’d say if you’ve gone through induction/consolidation and your doctor feels you’re a candidate for active surveillance instead of BMT or maintenance therapy, then enjoy the break from chemo! Let your body heal.

I occasionally mentor AML patients for my local hospital/oncology center. One of the patients, who has become one of my closest friends, had AML with similar diagnosis as yours. NPM1 positive, FLT3 Neg. She had her induction, consolidations and that was all she required…which made her really hesitant! She’s now 4 years out and healthy! No further meds only routine blood work every 3 months.

We have several members, @lindagi @sonieaml @dancouclanel4, and others, with AML whom have not had a BMT as their treatment, share their experiences in this discussion.

AML Successful Treatment
https://connect.mayoclinic.org/discussion/aml-successful-treatment/
I know and understand the underlying fear of the possibility of relapse. You’ve just gone through an epic journey with your chemo and now the prospect of ‘I’m all done?’ feels a bit incredulous. It’s difficult to move from patient, to survivor, to thriver and eventually to overcomer. At least those were the stages I personally felt. Slowly you’ll learn to believe that this is all working. And also, you’re not being left hanging out to dry. Your doctor will be monitoring you, through labs, on a regular schedule for any signs of relapse.

What chemo was used for your Induction/consolidation?