← Return to Prednisone

Discussion
sleepstate avatar

Prednisone

Lung Health | Last Active: Aug 11 10:05am | Replies (11)

Comment receiving replies
Profile picture for JackC @jackcusicusi

Born with Addison's Disease and taken steroids my whole life. Am no 73 and developed Pulmonary Fibrosis from my Ankylosing Spondylitis. I had to take 200mg of hydrocortisone per day for 5 days and taper off for 5 days to overcome acute exasperation. I can only take Cortef which is half the strength of prednisone. It only works if you get a high dose and stop the disease progression. Some doctors only want the bare minimum. As a guy whose taken steroids for 69 years, only a high dose will work otherwise is just a wasted effort.

Jump to this post


Replies to "Born with Addison's Disease and taken steroids my whole life. Am no 73 and developed Pulmonary..."

Well jackc many of us are or will be put into a situation where we don’t have much choice about what we have to take or do. I guess what I’m saying is you might just have to “roll the dice” on this one but it should always be your choice and how it goes down well, you hope for the best. Pleasure to make your aquaintance, Robert

Yep, the bare minimum is what you get no matter the medication or situation it seems. I'm 60 and grew up with uncontrollable asthma and on very frequent high bursts, as high as 100 mgs of Prednisone. Usually it was 60-80, but no less until more recently. Like you said, it's a total waste of time going in just to end up with 5 days' worth of 20 down to 4mgs of prednisone, I laughed when I saw what she prescribed, thought really? What is this supposed to do for me? And it did absolutely nothing! We have to fight and advocate for ourselves! Remind them we are not all textbook cases, in fact most of us aren't. Some of us have been on the same types of medications for 50, 60 or more years and we know what we're talking about when it comes to what works and how much we need to work. We know our medications!